my GP has told me I have been discharged from the Walton centre in Liverpool uk . . I have phoned the hospital , they say I haven't .

[export]

What is my GP playing at . He made me another appointment to see some one at another hospital . The GP is adamant I have been discharged. All because I ask him to refer me back to my consultant . My consultant is happy to take me back , but needs my GP to refer me . WHAT CAN I DO ?

[soup]

Where is your Parkinson's nurse in all of this and when did you last see her/him? Have you spoken to your local Information and support worker from Parkinson's UK and was that hospital the one where your neurologist is? How about asking for a copy of the discharge letter from your GP or equally valid, a statement, in writing that the you have not been discharged? Just a few suggestions.

[export]

I have spoken to both the support worker phone pd nurse nurse said that I am not discharge . I would have to speak to my GP but she is going to try and refer me back in house . My GP is phoning tomorrow . that all I know .

[soup in reply to export]

I hope you get what you need today. I don't see how your GP can even think that the hospital has discharged a patient with a chronic condition like this. If he still plays up ask him to look at the NICE guidelines for Parkinson's which states how often somebody with Parkinson's should see a consultant and that the condition should be managed a specialist level rather than GP level, even if it is the GP which prescribes drug changes that are recommended.

[Brooke]

Sounds complicated to me. Is this problem because of your health care system? I sure hope this does not happen in the US. I can go any Dr. I want and if I am not satisfied I can change.I have a wonderful Movement Disorder Specialist and I also had DBS surgery in May. PD is hard enough to deal with without having a problem with seeing a Dr. We have to stand up for ourselves. The squeaky wheel gets the oil. I wish you the best.

[PatV in reply to Brooke]

It does happen in the US where one healthcare provider is not talking to another and they are contradicting each other. I was in one of the best hospitals in New York City for a hernia operation and at midnight the nurse told me 'you've been discharged. you have to go home' I pointed out to her because I had not been given my PD meds, I could not stand, and I had no one to take me home. At this point she realized someone had made a mistake, I guess, and let me stay the night. I will not even begin to describe the nightmare my sister and I have been going through with my mom in a nursing home in Missouri. Yes, we have a choice, but by the time you jump through hoops finding the care you need, you better have your final directive in a handy place

[jonroberts]

Sounds like you are caught in a bureaucratic maize. Currently we can pick any doctor in the network. I hope we don't make things complicated in the US.

[PecanPie in reply to jonroberts]

I live in Richmond VA and I see a specialist at the Parkinsons and Movement Disorder Center twice a year right now and my visits are 1 hour. I can also get online anytime with questions, or send in my questions in advance of my visit. I am happy that I am not relegated to a GP or a Nurse Practioner once a yeear for 15 minutes as I have heard some complain about here. But here comes Obamacare so who knows whats down the line.......

[jonroberts in reply to PecanPie]

I am also satisfied with my PD care. I travel 230 miles to Albuquerque to see my PD Movement Disorder Specialist every 2 months. Appointment last 1-2 hours, depending on my DBS reprogramming. Hopefully my coverage will not change in 2014.

[rons]

US Parkies! Do not fear Obama care! Our NHS is wonderful but our Tory government looks at your health system and tries to sell ours off, have hospitals compete and make GPs responsible for people's health budgets. This means if your gp is a bit short of cash you may be refused certain things but as someone else said they have to meet nice (nat inst of clinical excellence) standards. But I only pay £100 a year for my meds and I know that until the Tories get their way I don't have to worry about paying for my PD care. if I get a mystery virus I can go to casualty and get admitted and not worry about the costs of two weeks of treatment as an in patient. It is excellent care and free to all at the point of use. That's why there was that great part of the Olympics opening ceremony last year. We love our NHS.

[export]

Well I know the NHS is on it knees . Just yesterday I waited 6 hours in A/E to see a doctor . I could go on but what, the point .

[rons in reply to export]

I didn't say it wasn't under staffed and under funded but we should treasure what we have instead of complaining and opening up the prospect of something much worse.