Starting a group/club/sessions for PD res... - Cure Parkinson's
Starting a group/club/sessions for PD residences in a assisted living facility. Any suggestions for agenda or procedures?
My wife got a support group going last October, get help from any of the national Parkinson's foundations, we found Wisconsin Parkinson's foundations extremely helpful. They set us up with speakers and helped to contact possible members. We keep things pretty up beat, it has never become a pitty party. My neurologist has recommended us to new patients who were very upset after diagnosis, and they seem to have found some amount of reassurance. Good speakers, and a light social atmosphere seem to work for us.
Question the proposed group what they would want from the group, expected outcomes and how you will act on the outcomes. I suspect issues like pain decreased mobility not being able to turn in bed and falls will all be discussed. It's operant then to have links to professionals who can help find answers. Let the group set an agenda be careful of unrealistic expectations .
sounds good. maybe depending on what group expresses invite people to demonstrate techniques. e.g. you can find Pamela Quinn a pwp professional dancer. Her techniques are so helpful. And my Alexander Technique teacher is making a dvd of his classes for pwp's. very helpful for preventing falls, relaxation, vocalization and walking without pain!
Thank you.
One thing I learned was be persistent..it can take a while before it stabilizes. Also if you have the participants take some responsibility, make some phone calls,take care of the coffee, Good luck. I would love to join, but I can't get him to "beam me up!"
I want to respond to the initial question and the ML after that. My experience and study in ,is N forget my other DXs. I won't bother you
Oops I asked for help about something and my son demonstrated and hit post! So it is garbled, but I think you get it. Some of your problems are other sources. The problem is that you were fortunate enough to have one of the conditions that has not been defined, the line I get is"every case is different". Thanks a lot!! In addition some of them join PD to make the symptoms worse, eg pain. I used to be called a cockeyed optimist, but this PD thing is some challenge !c I wish us all as speedy cure,or at least a friendly medication Now,about the ML thing. I am one three times over, one daughter L and two S. they are great people. My DL and I have very different thought processes, and we can tangle on some issues, but I just spent two months convalescing in their home and we are both still alive and kicking. My son chose her so its my business to honour that. So there are some, more than a few, who might just be OK, don't you think? Anyway I've said enough for now.
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