another question Does anyone else fall as... - Cure Parkinson's

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another question Does anyone else fall asleep in public. ie the movies, train, (even at dinner party tyope thing in resturaunt?

dubdiva profile image
11 Replies
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dubdiva
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11 Replies

I did before they got my meds correct!

Wow what a difference now.

ram927 profile image
ram927 in reply to

what do you take

in reply to ram927

I started on Miranex, went to Requip XL and then Sinemet. I don’t know if I was just taking too much or if I just couldn’t handle those meds. I am currently on Stalevo 4 times daily and Carb/Levo once daily. IF I take extra, by mistake, I get very tired.

Talk with your Drs. and see if you can't work together to find the best fit for you. :)

Gansbru profile image
Gansbru

Daily.

Narcolepsy is highly embarrassing, especially your very first moment. I used to have warnings before, but there has been many more since without warning, which does create a sense of embarrassment. DiCan has a very good initial step that hopefully helps. Just remember to communicate with your medical/PD team and let them know asap. If you don’t communicate they will assume all is well. You are the best person to describe this.

Jupeter profile image
Jupeter

Yes, I do, but then I can only manage about 5 hours in bed before my arthritis demands that I get up.

I've fallen asleep having a sandwich, and almost always while watching TV and at the cinema.

'Tis the nature of the beast, I fear.

ram927 profile image
ram927

yes just tell them they are boring and if you wan me keep the conversation meaningful

dubdiva profile image
dubdiva in reply to ram927

I like that!

Hi ram,

I fall into unconsciousness at any given time. I can be standing up doing laundry; sitting at the table talking to my husband; and most recently, I was sitting on a backless bar stool and don't remember going to sleep. I woke as I was falling backwards and landed on the ceramic-tiled floor, hard. While falling in what seemed like slow motion, I was wondering how many broken bones I would have. LOL

Luckily, no broken bones. Just very sore for a few days.

I take Requip and Sinemet. I've spent the last 3 weeks tapering off Requip; from 15mg to 7.5mg. I'm having a hard time right now and will have to stick to 7.5mg for a while. I wouldn't recommend anyone take Requip or Mirapex. They can affect you very badly. Wish I had known then...

in reply to

And, yes, in public. Frustrating!!!

dubdiva profile image
dubdiva

I fell asleep durring Charles Asnavours farewell tour- My friends whom I work with when in Italy- when I was complaining of insomnia said "you should just go to a resturanunt. Love the, for that. What a relief laughter is!

Thank you everyone_ Im lucky to have found this board.

srarndt profile image
srarndt

dubdiva and the rest of you,

Thanks you for asking and for evreyones replies here, too. This is helpful to hear what all of you have to say about these issues.

When I was first Dx my neurologist put me on Requip. Bad for me. When driving I was falling asleep at most every red stoplight. I fell asleep twice midsentence while teaching classes. The students claimed i kept talking - and that they weren't quite sure what was going on.

Very embarassing.

Steve (Bisbee, AZ)

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