Any one in the same position as me?? - Continence Support

Continence Support

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Any one in the same position as me??

Postlady profile image
7 Replies

Hi everyone.

Im new to this sight as of today. Im just reaching out to see if any one is in the same position as me. I have suffered really bad over the last 7 years with stress incontinece . 1 and a half years ago i was offered a fascial sling operation to fix this issue. Unfortunately this operation did not work for me. Now instead of all ways wetting myself i now cant go to the toilet at all unless i use a catheter. And Unfortunately the side effects of using a catheter all the time include UTI's which i get almost every 3 months or so. I am hoping to speak to someone that is in my position just to even chat so i dont feel so alone in this situation i find myself in.

Looking forward to connecting with like minded people and wishing to feel less alone.

Thank you. 🙂

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Postlady profile image
Postlady
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7 Replies
BarrySimpson profile image
BarrySimpson

I have found Nitrofurantoin very effective in preventing UTIs.

Postlady profile image
Postlady in reply toBarrySimpson

Thank you for replying to me Barry. Do you take this on a daily basis? I just googled it there and it says it's an antibiotic. I have been taken uti pro plus, 15 days on it and 15 days off it. But still keep managing to get uti. My situation is common when having to self cathacher unfortunately. If taking the likes of an antibiotic every day would that not be bad for you?

BarrySimpson profile image
BarrySimpson in reply toPostlady

On average I take a bout 3x50mg tablets per week. I have a suprapubic catheter and I take a tablet when there appears a risk of sediment blocking it.

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Msccruises profile image
Msccruises

Sorry to hear about your situation. I was offered a sling more than 5 years ago and refused it because I had heard bad things. I am having Indoba electrical stimulation at the moment and doing pelvic floor exercises but still use lots of pads and wondering if there is any other solution

Postlady profile image
Postlady in reply toMsccruises

I was with my doctor the other day. She is going to bring me back in to try loosen the sling and hopefully I will be able to go toilet by myself again. There is a risk that if she loosens it too much that I go back to square 1 leaking loads again but I think that's a better alternative than having to use a catheter every time i need to go. I do regret getting the sling done. It's not worth it if it doesn't work properly.

Lee779 profile image
Lee779

Hi postlady, I can't recommend this personally as I haven't had this but my mum has. She has bladder botox every 3 months I think. It's done her a world of good. She still has to wear her large pads but she's no were near as bad as she was and the UTIs have 80% disappeared. She has stress Incontinence, bladder prolapse and has to wear an internal pessary to hold her bladder up. The botox may be an option for you possibly.Hope this may help in some way.

Postlady profile image
Postlady in reply toLee779

Hi Lee Thank you for your reply. At the moment I do get the botox done and it's amazing. Best thinking I ever got. So this has fixed the urgency to urinate all the time. My issue now is that after my operation I can't urinate by myself any more I need to use a catheter each time and that's what's giving me the UTIs. I was hoping to find someone on here that is going through what I'm going through.

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