Children's Liver Disease Foundation
1,251 members512 posts

frustration

So Aaron and I went to Birmingham to have tests in hope they could do the meosorex shunt, which at the time it was suggested they could after the angiogram and venogram, however the surgeon has decided to wait!!! and use this when needed. Never felt so gutted, dont these people realise the rollercoaster we are on as parents. I appreciate that aaron is a slightly more complex case as his spleen is also blocked and this is more genetic, but I could just cry, I have seriously had enough and I am trying to now get Edinburgh to see us.

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It certainly is a roller coaster isn't it ?. I hope you are ok and getting the answers you need. x

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getting there xx

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