Chronic Myofascial Pain

I'd like to introduce myself

Hi my name is Kym. I tweaked my mid back about 4 years again and started experiencing pain on my left side only. It has gradually spread from my mid back, down my left flank, hip, t-band, up to my shoulders and neck. I have been MRId to death. A couple of months ago I started getting pain in both hands and feet in the joins. It's like something is just spreading thru my body. My pain dr has several times mentioned myofascial pain syndrome (as opposed to fibro since fibro affects both sides of body). I was also diagnosed with hashimotos 2 years ago. I basically feel like crap almost all the time. Last week I requested that my dr have me tested for rheumatoid arthritis again. (I tested negative for marker a couple years ago), but since my hands and feet have started hurting so bad I requested another test. My hips ache like crazy. Does anyone have symptoms like these? If so what was your diagnosis? Anything that helps with pain, which is worse in mornings and evenings.

Thanks for any support!

Kym

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It does sound like mps I hav ebeen in pain for 27 years after a small accident in my kitchen .

I find that gentle stretching helps and physio especially trigger point acupuncture and myofascia release .

Stress makes pain a lot worst and certain foods I have an electric overblanket at night in the winter it really helps it stops your muscles from been so sore in the morning .I hope this helps .

Bullring

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Thanks for replying. My back tweak was also very minor. There was a 2 inch drop in a sidewalk where I was walking. I looked over my left shoulder and missed the step, slightly jarring my back. Four hours later I turned when someone tapped me on my left shoulder. When I turned it felt like someone stabbed me in the ribs with a knife and I went down to my knees. I used to be very active. I worked out 4 days a week, went dancing all the time, hiking, lots of outdoor stuff. Now when I do any of that I have to load up on pain pills and anti inflammatory pills but I still pay for it for several days after. I have noticed that stress and lack of sleep there me into a vicious cycle of flare ups. Stress, no sleep, no sleep= increases pain= more no sleep= no control of emotions. I'm a wreck. I have literally tried everything. I have been to so many different kinds of doctors. Pain and spine dr, Chiro, acupuncture, physical therapy, several kinds of massage. I've had injections in my back and neck which do nothing. I've had my spine "stimulated." I now get weekly massages that sometimes last 3-4 hours. He will work on me until he gets all the way thru my body. It's weird too, because it's my left side that aches ALL THE TIME, but when he works on my right side IT hurts just as bad as my left side, sometimes worse. My muscles hurt and all my attachment sites hurt so bad. Some days I can barely get out of bed. It has changed my life so dramatically, including impacting my marriage. I am currently separated from my husband who has told me I'm not "fun" anymore. It's depressing as hell.

Are there any meds out there that help? I have been on several muscle relaxers, meloxicam and ketoralac and I take tramadol 2X daily. I hate taking all these pills and having to get massaged every week...boy that sounds so snotty. But these massage are myofascial release and they HURT SO GOOD! Needless to say, I don't get the "relaxing feel good" massages. 😞

I just want to feel better. I want my old life and my energy level to come back up. I want to be fun again. I guess mostly I just need support from people who understand. My stupid husband thinks I'm making it up.

Kym

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Kym

I really feel for you it takes years to come to terms with this illness there is no cure you can only find what works for you and stick with it .

Personally I do not take drugs unless I am in a major flare up . I bought an infa red cabin in March and I go in it everyday in the winter twice a day I find it helps . I have cut quite a few things out of my diet like caffeine I only have it before 12pm I try and stay gluten free and have cut down on dairy all seems to help .

I do exercises inn the morning and attend a gentle aquafit class twice a week in a very warm pool .

Personally I find drugs are not the way forward and a holistic approach works better I am never pain free but some days are better than others the summer is a better time .

I am sorry to read that your husband left although with his poor attitude you are probably better of without him .

Its a difficult condition and I do find its hard for people to understand as we generally look ok .

Bullring

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I have had this for 18years I now I more good days than bad with melds on a bad day heating pad

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it is difficult to face up to this illness but as there is no cure we have no option medication helps when you are in a bad flare but the more you take it the less effective it is and the side effects are not great

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