Anxious : I’m having a tough day today... - British Liver Trust

British Liver Trust

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Anxious

6 Replies

I’m having a tough day today . I thought I’d have my mri results today and have tried to ring the secretary but her phone rings out .

I’ve even thought that maybe the ct was wrong .

It’s just a horrible stage where you have no control and it seems like such a long process for a diagnosis . It’s 3 months now of tests .

I think you’re all so brave .

6 Replies
Lobretto1983 profile image
Lobretto1983

I understand exactly how you feel. Something like medical purgatory awaiting judgment. I'm in the same situation but maybe a few steps behind you as I have not gotten my mri yet, thats next week.

in reply to Lobretto1983

It’s awful . I had gastroscopy for gastritis , which showed hypertension in oesophages and stomach , then ct and then mri 11 days ago . I hope I don’t have to go over the weekend .

The mri is fine don’t worry you have a cannula in and have to do a lot of breathing in and out but it’s fine .

What have you had done ? X

Lobretto1983 profile image
Lobretto1983 in reply to

I've been through so much over the years without a diagnosis. 5 colonoscopies, 3 upper endoscopies, 4th one next week. Multiple ct scans. I've also done many mri of my head due to a brain injury. I've had a bowel resection due to prolapse and my blood is thin and doesn't clot fast enough and they have yet to figure it out. This is the first time in years they even considered my liver as I'm lean and don't drink. It took some spider angiomas and palmars erythema for my gi doc to realize my liver is likely in trouble...12 ct over 8 years all show hepatomegaly, some show nutmeg liver and gallbladder decompression but nobody connected the dots until some subtle skin changes happened. Its infuriating and terrifying. I keep you in my thoughts and prayers.

in reply to Lobretto1983

That’s awful . I’m slim and don’t drink too . I wonder why the doctors haven’t treated you if the ct scan showed liver changes ?

You’ve been through a terrible time .

I hope you get answers soon x

Lobretto1983 profile image
Lobretto1983

Short answer, the VA hospitals are terrible and most all of their doctors just don't care.

So you’re a veteran ?

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