New to forum and it’s been really helpful to read through the posts.
My Husband (48) was diagnosed Jan 17 with ALD but has previously had other immune conditions too. Has abstained completely from all alcohol following this date but has deteriorated in last 6 months. He now has permanent jaundice which is very bad, ascites is under control with drugs, as are his varices. Was on lactulose for suspected HE but EEG scan has come back clear so now told to stop taking.
Specialist confirmed this week that his UKELD score is 54 which having researched, seems to place him in a category where a transplant could be considered if we’re very lucky/fortunate. (Have to say this score has really worried us more than we already were).
It just feels that the Hepatologist needs so much persuasion to even get us an initial referral into the transplant clinic (now happening within the next 4 weeks).
Diet and lifestyle along with every other piece of advice being followed to the letter but does anyone have any other advice that might help us please? Thank you.