Tamoxifen

[brianna29]

I was wondering if anyone else who is taking tamoxifen has a metal taste in their mouth.

[Lainey66]

Oh nooooo I hope not. I am looking forward to getting tastebuds back. I havent started it yet but will be 🤔

[brianna29 in reply to Lainey66]

It's strange. I can still taste things but when I am not eating or drinking it is like i have had a filling.

[Lainey66 in reply to brianna29]

Oh dear.... i have had 9 months of chemo and currently on radiotherapy and my tastebuds are up the creek without a paddle. Plus awful sores in mouth and throat after cmf chemo.... all the joys eh..... lol 😄 hope your treatment is going well and taste comes back to normal x

[brianna29 in reply to Lainey66]

It is thank you. I have been lucky not needed chemo or radiotherapy. Just had a mastectomy and reconstruction. Hope your treatment goes well

[Lainey66 in reply to brianna29]

Ah lucky lady ☺ Im one of the greedy ones .... everything on the menu 😂😂 TC chemo, double mastectomy, AC chemo, CMF Chemo now radiotherapy... ill glow in the dark next 😊😊😊 it will be like that song as a child in school "Jesus wants me for a sunbeam" 😂😂

[brianna29 in reply to Lainey66]

I am very lucky. Doesn't always feel it when I am having my low days like everyone. Every time I hear that song i will remember you now xx

[Lainey66 in reply to brianna29]

I must admit I get low now and again but find laughter the best medicine. I have also started painting which really takes your mind off things. Remember we are all allowed our low days. You take care xx

[brianna29 in reply to Lainey66]

True and you x

[Jacky_davies]

Been on it for 18 months now and no problems with taste buds - thank goodness 😀. I hope that it's something that sorts itself out for you and you regain your taste for food soon xxx

[Hidden]

No nothing like that bit did you know it is being used as a preventative medicine when you have siblings? I've just been told to advise my sisters to discuss going on tamoxifen with their GP.

Xx

[nikonBlue]

Hi, I've been on tamoxifen for almost 6 months now and don't have this issue with the metallic.......just every other side effect known to man!!! (or woman) Biggest and worst is the flushes so am now on Megace as well to stop the flushing.....we shall see! I'd check this metallic taste thing out with your doc or breast care nurse.

Blue

[brianna29 in reply to nikonBlue]

I to have the terrible flushes plus i am going through the menopause. I also get tired. X

[nmc10354 in reply to nikonBlue]

Hi. I'm Nora, nmc10354. I am having awful hot flushes too. I've been on Tamoxfen since August 2015. I've tried homeopathy, just have 1 more session of Acupuncture and am on Venaflaxin which are supposed to help. Nothing has made any significant difference. will you let me know how Megace goes please. Good luck.

[nikonBlue in reply to nmc10354]

hi,

I'm definately better heeps better with the Megace (Megastrol Acetate). I take 160mgs daily and I no longer need to change my clothes 5 times a day!! Was so debilatating. I had to take changes to work and felt yeuch all the time. I still have the flushes but nothing like before. Ask your doc about Megace!! Good luck

Blue

[brianna29 in reply to nikonBlue]

Thank you i will do. You can't rest which makes you even more tired x

[nikonBlue in reply to brianna29]

Yes, totally understand. I'm only now beginning to find just a little bit of energy and am chuffed that I managed the 5k Race for Life yesterday. What an experience! Take care

Blue

[brianna29 in reply to nikonBlue]

Well done. It is a great feeling when you complete the race for life. Should be proud of yourself. X

[vwel]

I've been on Tamoxifen for nearly 2 years and thankfully no metallic taste....might be worth just checking in with your onc/ nurse.x

[Taffia]

Yes I did when I started taking it. Kept thinking there was a gas leak in the house. It did wear off. X

[brianna29 in reply to Taffia]

Thank you x

[Jenny1410]

Been on it a week now no effects

[brianna29 in reply to Jenny1410]

I have only just noticed and I started it in march. I think it is very strange xx