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Brain Aneurysm Awareness UK
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Pain

Is there anyone out there that gets pain in there head, short,sharp pain as quickly as it comes it goes. I have a mca unrupered brain anesrysm I’ve been told it has nothing to do with my Annie as it is just over 6mm and classed as small and very low risk.

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Hi

I do get these like little electric shocks right on the top of my head - I have a 4mm Aneurysm (well seeing consultant tonight to review Sunday's scans so could be bigger ?? In my MCA)

Laura x

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Hi Laura, Yes like electric shock, I can go months not having any pain then out the blue I have a few weeks or more of this pain. Makes me very worried but as I said the consultant says no connection.Hoping tonight you get some answers and you will learn of what way forward you will be taking with it all.Please let me know I’ve been told mca trifurcation and very low risk less than one per cent. Good luck maybe try and write down as much as you can to ask them xx

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Hi, how did you get on with the consultant xx

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Hi he confirmed the aneurysm size location etc after my scans on Sunday- behind my right eye level with my temple - he said it is low risk ....... but in my eyes still a risk of rupture regardless of size and location - he believes I can have it coiled and it should ...... be a simple procedure ???

I am now seeing a surgeon at QMC in Nottingham on Monday to hope he agrees and I can get an op date ?

I've never had an op apart from c section so not sure what wait is like as if it's a long NHS wait might have to look at other options

In my eyes any risk of it rupturing is a risk and I don't want to live on the edge ?

Laura x

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Good you are being seen quick what area do you live in? I’m the midlands and had 11 months waiting but at last I have appointment on 7th November

How big is Your Annie?

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4mm almost - I went to see a private neurologist last night as i just couldn't wait for December for an appointment to review scan x

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I was told risk of rupture low but more chance of stroke if I have it operated on. Sometimes there are days when it is very hard living with it. I wish I had a second opinion. Is your mca Annie a little above your eyebrow or thereabouts ? Let’s hope you do not have to wait too long for the operation xx

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He says behind my eye level with my temple - he said the operation carries a risk and I weigh it up continuously but I'm only 36 and don't want to have this living on a knife edge for years and years and the risk that it'll grow and rupture Im such a worrier x

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Yes you are very young indeed and would be awful to have this worry. So you will have operation soon x

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I'll let you know what the surgeon says on Monday hoping he'll agree! X

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Good Luck and hope it all goes as well as it can for you X

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Good Luck and hope it all goes as well as it can for you X

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Yes I get exactly these pains in my head x

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Have you had them long x

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Probably 18 months gp said nothing to do with Annie. Face also goes into a spasm and drops down sometimes?

That’s how my Annie was found because of head pain like you and spasms? But gp has always said not related to Annie!!!

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Will you have yours operated on too

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Mikey123 I haven’t a clue what if I will do! Never once spoke to surgeon 👨‍⚕️ only gp had 3 different scans each have shown it growing last scan showed 8.5 mm so will wait and get all information first then think 💭 hard x

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What a wait for you to see a surgeon it's terrible. Really hope you see someone very soon.

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Got the appointment come through last week seeing surgeon 👨‍⚕️ on 7th November x

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X

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Hi mikey123

I had these pains before my op and i am still getting them so its a mystery to me too

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Hi, Bonnieblyth

Yes these pains are concerning, and even though we are all told that they have nothing to do with brain anesrysm Why is it that there are many people with these symptoms, just too much of a coincidence but the consultents won’t have it. How are you doing since your op xx

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Hi mikey123 ive been thinking about it and maybe those of us with brain conditions are wired dif so that there may be blood flow constrictions which may cause pain spasms just my theory but you never know. Im doing ok op ws 2 months ago ws on a high that i had survived with no major deficit but then kind of went backwards. Had some great days and prob pushed myself too much as would then pay for it landing myself in bed for days but all power for the cause. The main thing is the annie is dealt with. X

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Yes I do Mike, although my consultant says that it’s nothing to do with the aneurysm 🙄

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I’ve take Duloxetene for the pain, it’s an anti-depressant but is also good for neuropathic pain and it does help.

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If it helps you that is good. For me there must be a connection it is so frustrating when told it is not. Again it's believing them I have not got much faith but like my son's say when we are worried you can worry lol.

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