New Member: Well I'm new to this site... - Lung Conditions C...

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Titanic profile image
17 Replies

Well I'm new to this site, so I thought I would create a quick blog, just to say hi to everyone on here. I was diagnosed with COPD almost two years ago now and since the initial diagnosis my condition has deteriorated to the point that I now need ambulatory oxygen.

I do manage to get around though and have just arranged some pulmonary rehab' so it will be interesting to see how that goes. I am sure there are lots of things I don't know that could help me so I will be reading through the information on this site.

But for now, Hello!

Bob

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Titanic profile image
Titanic
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17 Replies
Preshous profile image
Preshous

Hello and welcome Titanic you sure in the right place for help and advice and a good natter if you want one..... :)

pollyjj profile image
pollyjj

Hello Bob welcome to the site why not try Breathe Easy if you have one locally.

There will be many more following me with lots of good advice.

polly

HI welcome to the site, the following link may help you understand more.

bupa.co.uk/individuals/heal...

libbygood profile image
libbygood

Hello and welcome Bob, I've learnt more from this site than from any respiratory doctor or nurse, I am on ambulatory oxygen too. It would be interesting to hear how your PR goes, I've heard good reports and not so good.

Libby

terri-rose profile image
terri-rose

Hi Titanic - Bob, Just happened to be passing my computer (like you do ) and thought I'd have a quick look. Welcome to the site, I hope you find it as enjoyable and informative as I do. My diagnosis was only a couple of months ago. I was told I had lung disease and it was called COPD - I was then just sent out in to the big bad world with a printed NHS fact sheet in one hand and an inhaler in the other - to get on with it - except I didn't - I fell to pieces!! It was only by sheer luck I found this site and met some wonderful people, who supported me through the early days. Everything I know about the disease I have learned from here!

Why Titanic? Didn't that have a very unsavoury end?? What about something more positive like 'The Pride of Calais' or 'Lion of the Seas'??? (actually, I made the last one up - you'd never know would you?) Take care :-)

lavender1 profile image
lavender1

Hello Bob May I also welcome you "aboard". This site is a lifeline -no pun intended- there is a wealth of information about this illness and great people you will be able to relate to and the help goes from one to another on a daily basis. It helps to keep the fear and isolation at bay and there's always someone you can help or be helped by

Welcome. It's a good site to find.

Marie x

Hello and welcome Bob.

Hi and welcome Bob. I have just started PR and I am finding it very good. They educate you about the condition as well as encouraging you to exercise :)

tanyamarie profile image
tanyamarie

Good Evening Bob and welcome!

Hi Bob and welcome. I was diagnosed with COPD about 2 years ago and its a right b......! There are lots of great folk on here.

Bev x

Puffthemagicdragon profile image
Puffthemagicdragon

Hello Titanic. If you ever get that sinking feeling I'm sure we can cheer you up ! :)

boodles4 profile image
boodles4

Hi Bob and welcome, I have just started ambulatory oxygen and my oxygen levels are better. I have done Pulmonary rehab and am going to start a maintenance class for 6weeks beginning of nov. I stopped doing the exercises for a bit due to other stuff but have started again and feel better for it too. The COPD is all a bit scary but its great to have a forum like this.

sassy59 profile image
sassy59

Hi Bob, and welcome. You have done the right thing by coming on this site and I know you will find it very helpful. The people on here are brilliant. xxx

grandma3 profile image
grandma3

My experience was similar to terrie-rose. That was quite a few years ago. Believe me I have learnt a lot from this site. Other places I have tried for information too often advised phoning for mor info or answers to any questions I might have. Since I am deaf, obviously no use to me.

jedi profile image
jedi

hi bob & welcome i did PR about 4 years ago & learnt a lot aboout copd ie its ok to get out of breath but dont panic & i learnt how to manage my illness,,, hope you get on ok with PR

PollyP profile image
PollyP

Hi Bob, I have just caught up with your post. Welcome, and I wonder how you are getting along with your Pulmonary Rehab.?

I went through the programme this summer and it made a world of difference to me. The exercise was very good and even though I don't feel like it sometimes, exercise always makes me feel better afterwards and for a few days. Now I attend the gym once a week and a COPD exercise group once a week. Hope it is working for you?

Polly

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