I was diagnosed with IPF in December 2011, Last week I had the six minute oxygen assessment. The first part was without oxygen and sats went as low as 70. I then tried the six minute test with oxygen but the only reasonably light portable tank failed as soon as I started. The nurse went away and returned 20 minutes later with a waist high trolley with a rather heavy oxygen tank that I had to pull while trying to walk bristly. The tank was so heavy that I could barely manage my breathing so the results were inconclusive. However, she still offered me oxygen if I would accept the liquid oxygen tanks.
Since I feel that I only need oxygen on an as needed basis I brought up the subject of a battery operated portable concentrator because I think that the liquid oxygen tanks would not provide me the flexibility that I need to be able to stay reasonably fit and continue to do walking, lawn mowing, and other physical activites that I believe that I should still be able to do. She was very much against the portable concentrators, I think based on the fact that I was sometimes breathing through my mouth during the test with oxygen. I used to breath through my nose but when the IPF first start I had five days of horrendous nose bleeds and blocked siniuses so the only way that I could breath was through my mouth.
My question is has anyone else had the same problem and been able to retrain themselves to breath through their nose enough to use a pulsed concentrator? I am currently doing better at it but do have lapses.