Its me again with another update.!!
Hi everyone I hope you're all ok.?
Spoke to specialist on Monday results .... Pulmonary fibrosis. I asked what my lung function test results were and he said 54%in each lung?
Got 6 weeks to come off steroids, mentioned a drug that I fit the criteria for a drug thats all I remember, every question I had went straight out my head if that makes sense !!!
My head is all over the place now that I know again if that makes sense?
Got no support offered so I spoke to BLF nurse to explain
I'm sorry if this post doesn't make sense my memory is terrible on the steroids and to be really honest I give up
Feeling low like having to wait 17 months and now its real?
I'm terrified my biggest fear is not being able to breath since I was little.
Again sorry if this post doesn't make sense, anyway I'll sign-off need to digest everything. Thank you for taking time to read my post. Take ❤ Michael.
Thank you for your reassuring messages 🙏
This is the most welcoming and friendly people
A big thank you 😊 .