Getting scared: Now have a date for my... - British Lung Foun...

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Getting scared

Wheezylady
Wheezylady
β€’64 Replies

Now have a date for my LVRS next Wednesday, the 22nd Jan.

64 Replies
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sassy59

Thinking of you for the 22nd and wishing you well. Love the photo. Xxxx

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Wheezylady
Wheezylady
in reply to sassy59

Thankyou. It's all a bit scary, but also quite exciting.

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RoadRunner44

What is LVRS? I'm trying to make a list of these abbreviations to build up my knowledge.It's obviously an important date for you and whatever you will be having done I hope it goes well.

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Wheezylady

Sorry, should've said. Its lung volume reduction surgery. 😊

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skischool

Wheezy,please don't go next Wednesday as it will only be the 15th and even for LVRS i don't believe you will need 7 days pre op prep.Joking aside me and Scruff's wish you the very best of success with the procedure and a gentle and full recovery with nicely reconditioned lungs to make your life much happier. xx

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poemsgalore1

Me too Wheezy. 😘

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Damon1864
Damon1864Volunteer

Will be thinking of you on the 22nd of January, hope all goes well with op. Have a lovely evening and take care of yourself 😊 Bernadette xx

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Comino2

Wishing you all the best for a speedy recovery and improved breathing.

I to am waiting for LRVS at the Brompton so I understand your 'scarey excitement" I have been waiting a few months now and not sure if I should chase them up or not.Which hospital will you be in ? How long did you have to wait after they agreed to you having the surgery ? xx

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Wheezylady
Wheezylady
in reply to Comino2

I'm going into Papworth. Once it was decided to go ahead with surgery, it only took a few weeks. Keeping my fingers crossed for you.

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Comino2
Comino2
in reply to Wheezylady

You will be in expert hands there,will be thinking of you,when you are up to it do keep us posted xx

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Wheezylady
Wheezylady
in reply to Comino2

Thankyou. I'm not the best patient in the world (retired nurse) 🀣. I feel sorry for the staff in Papworth. I will be in touch with the noticeboard as soon as possible. X

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Echoblue

Wishing you all the best. Anticipation of anything is always hardest part. Adore the photo x

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Wheezylady
Wheezylady
in reply to Echoblue

Thankyou. That's Henry when he was a pup. He's 12 now. 😊😊😊

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Emily61
Emily61
in reply to Wheezylady

Good luck you will be fine

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Wheezylady
Wheezylady
in reply to Emily61

Thankyou. 😊

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HungryHufflepuff

Wishing you all the best. I hope you have a good recovery and that it’ll improve things greatly for you 🀞

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Wheezylady

Hope so. Thankyou. 😊

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Caspiana

It's very normal to be scared Wheezylady . But you've decided and are determined. That will carry you through and I have no doubt you will be well looked after. All the best for the 22nd.

Cas xx πŸ˜ŠπŸ‘‹

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Wheezylady
Wheezylady
in reply to Caspiana

Oh yes. No chance of me backing out. I know it's a chance for a real positive change in my life. Getting so much support from the people on here and I'm very, very lucky to have lots of love and support at home. Thankyou so much. 😊😊😊

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Spacecat1

Hope all goes well. Love the dog. Take Caree x

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Wheezylady

Thanks. And Henry thanks you too. 😊

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illawarra

Best wishes for a safe and successful procedure and better health ahead. x

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jackdup

Wishing you luck, and pray things go well.

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Emerdale

Try not to over think it X This is a good thing that’s going to help you a lot πŸ‘We are all with you and wishing you well XX

You are not alone ok πŸ₯°XX

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Hacienda

Hi Hun, I envy you, be strong and know that every help that we are given for our Lungs is Progress and Prolonging our Life. I wish you the very Best for the 22nd and a Speedy Recovery. Love n Hugs. C. XXX

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Ergendl

Good luck for you on the 22nd. Hope you get the results you want from the procedure.

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Alfiebax2

Please don't be scared . Take it as getting your life back . I had LVRS in October 2018 and I wished I'd had it done sooner . Just do as they tell you but a positive outlook really helps your recovery . I'm now 72 and because of my positivity my recovery was very quick

I had mine done at RBH in London . Good luck and keep us informed .

Best wishes Babs xx

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Hacienda
Hacienda
in reply to Alfiebax2

Morning Babs, I always think of you when I see LVRS mentioned, So Happy you have done so well, and continue to do so, Stay Strong and Positive as always. Love n Hugs. C. XXXX

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Alfiebax2
Alfiebax2
in reply to Hacienda

Thank you my darling and I do hope you are doing well . I'm not too good at the moment as I'm still waiting to go back to my previous medication. They changed my meds to Trekegy Ellipta and I'm afraid I can't take it it does nothing for me so unfortunately I have become very very breathless . Have an appt. for my COPD review so will see what they have to say . You keep well and sending you much love .

Babs xxxxxx

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Hacienda
Hacienda
in reply to Alfiebax2

Thank you Babs, So Sorry to hear this. I am still on my Steroid Inhalers and now on Long Term maintenance Dose of Prednisolone x2 each Morning. I hope they get the correct inhaler for you, but when changing it's Trial & Error to find the right one that works for you. I had a long time with Very bad Breathlessness, but now I seem to be levelled out, I still have my Oxygen 16 hours, though some days 24/7. Some days are Bad some days are Good, We are all the same. Right now I am back at my Exercise Classes and I feel much better for them, waiting to be called back to Rehab. We plod on, but at Least we are Plodding on and planning each Day as it comes. Take care Dear Babs. Lots of Love. C. XXX

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Alfiebax2
Alfiebax2
in reply to Hacienda

You too my darling

Much love xxxxxx

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pecede
pecede
in reply to Hacienda

Hi Hacienda

As you say, "we plod on!" I take a steroid inhaler but it doesn't work as well as it used to, so what else is new? I'm also stuck on 50mg of pred per day which has thank goodness made a difference, not sure if I'm close to the max...

Love your posts keep them coming

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Samjeff
Samjeff
in reply to Alfiebax2

Hi Babs I went for my yes or no for LVRS it’s no as the left lung is dead no activity at all the doctor said it was very rare for the disease just to attack one lung maybe 2 or 3 in a 1.000 he said the right lung was relatively healthy, shame but never mind this site and ones like yourself really do help others with your experience. Thanks and best wishes to all. Sam x

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Alfiebax2
Alfiebax2
in reply to Samjeff

Oh Sam I'm so disappointed for you but hey you have a good right lung ....for now . Such a shame I was hoping you were going to get sorted but I don't know you are rare with your condition . I wish you all the best and keep fighting .

Much love Babs xx

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Samjeff
Samjeff
in reply to Alfiebax2

Well we tried now for all of us have to strengthen muscles ...did you manage to get off oxy Sam xx

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Alfiebax2
Alfiebax2
in reply to Samjeff

Oh yes I've been off oxygen for best part of 6 months now although the way I am at the moment because of change of medication I wish I was back on it ....but I'm sure when they sort my meds out I will be back on track .🀞 Take care of yourself .

Love Babs

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Comino2
Comino2
in reply to Alfiebax2

Hi,

Were you on oxygen 24/7 before your operation ? xx

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Wheezylady
Wheezylady
in reply to Comino2

Not at all. It seems weird, because I read other peoples' stories on here and sometimes I feel like a bit of a fake. I'm actually otherwise a very fit, healthy person. I'm just very short of breath most of the time and my mobility is limited because of this, as with any COPD. Very frustrating but I rarely get infections and have no heart or BP issues. I think I'm just lucky that my emphysema is very localised, which is the main criteria for being a good surgical candidate.

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Samjeff
Samjeff
in reply to Wheezylady

Hi just a note about Papworth best hospital in the world Sam

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Wheezylady
Wheezylady
in reply to Comino2

Sorry got mixed up. Thought that question was aimed at me. 😜😜😜

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Comino2
Comino2
in reply to Wheezylady

That's ok,apologies for cutting in xx

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Alfiebax2
Alfiebax2
in reply to Comino2

No just ambulatory although at the end my breathing was becoming increasingly short so they advised me to turn it down to pulse whilst sitting down , that was ok except for the fffft fffft fffft noise lol

Take care .

Love to all .xxxxx

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Comino2
Comino2
in reply to Alfiebax2

I am on pulse for ambulatory and I just wondered if I still would be after surgery xx

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Alfiebax2
Alfiebax2
in reply to Comino2

I was told to use my oxygen directly after surgery for however long I felt I needed it but I only used it for a week .

Xxxx

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Shortlungs

Good luck what a beautiful dog

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Wheezylady

Thankyou. We love him. πŸ’™

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Izb1

Henry is lovely, what a picture, could love him to pieces. Good luck for the 21st, hope all goes well x

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Wheezylady
Wheezylady
in reply to Izb1

Thankyou. Henry is now 12. Still lovely, if a little slower. 😊

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Izb1
Izb1
in reply to Wheezylady

Oh! bless x

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dmf64

hi wheezylady, wishing you all the best for your surgery and a speedy recovery. I too am waiting for lvrs have had the go ahead from thoracic team just awaiting results of heart scan(not expecting prob as had one in may to ensure no damage from PE and it was fine). Appointment 13th feb for final yes or no. Please keep us updated with your progress. Will be thinking of you and again good luck. debbie x

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Wheezylady
Wheezylady
in reply to dmf64

Thankyou, and will keep everything crossed for you. 😊

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Susan1200

Wishing 🌠you all the best for the 22nd of January 🐞

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joycet

Wishing you all the best for your LVRS I had mine done 3 years ago & had a lobectomy as well, Speedy recovery xx

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Wheezylady
Wheezylady
in reply to joycet

Wow. That's alot to go through. Hope it helped. Thankyou. X

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Nicholatracy

Love and good wishes. What a beautiful puppy. Is he a golden retriever 🐞

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Wheezylady

Thankyou. Yes. Henry is 12 years old now. Time flies. 😊

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powderpuff

Wishing you the best of luck Wheezylady

Papworth is a wonderful facility so try not to worry to much & I’m sure luck won’t be needed! πŸ’πŸŒΉπŸ’πŸŒΉ

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Wheezylady

Thankyou. Everyone on here is just so lovely. X

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mikebaker1949

Good Luck for the LVRS surgery on the 22nd.I wondered what made you decide to go ahead as you said you said your only symptom was breathlessness.Have you been able to walk okay.I ask because I have been delaying my operation for over 2 years as I am still fairly mobile albeit tight chested a lot of the time .All the Best Mike

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Wheezylady

Yes, I'm mobile enough. I'm unable to climb any further than the first floor in our house. I dont need nebulizer any more ( I used to use them all the time before I got a good copd consultant). I was also permanently on steroids. So many steroids, I had Cushings syndrome and cataracts. And all for nothing. I was getting desperate and so asked to be referred to Addenbrookes. Long story short - my consultant did some thorough tests and nobody was more surprised than me when I was told I was very suitable for the surgery. Bad emphysema, but very localised to upper portions of both lungs. So i jumped at the chance. I long to feel human again. Yes, i understand that in 5 years' time i may be back in the same position, but that's 5 potentially more active years. I'd rather have that now, at the age of 63, than keep putting it off.

I'm aware that there are many people out there who are sicker than me by far - and they probably dont meet the criteria for surgery. But I'm grasping the chance of a better few years for myself and my family.

If i were you, i wouldn't put it off. Life's too bloody short. I'll be on here after surgery and will be very honest about my experience.

I wish you well. Xxx

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mikebaker1949

Thanks for your reply ,as I say hope all goes well & you have a speedy recovery. Mike xx

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Dedalus

Good luck. Please keep us updated x

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Wheezylady
Wheezylady
in reply to Dedalus

Thankyou, I will. Excitement and positivity now overtaking the fear. And hey! Got new pyjamas! 🀣🀣🀣

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Chriskho

Good news, good luck

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