Bronchiectasis : Hello.... does anyone... - British Lung Foun...

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Bronchiectasis

Ramy22 profile image

Hello.... does anyone here with bronchiectasis have Essential

thrombocythemia or know anyone with both? I have both and one seems to be interfering with the other.

10 Replies

It’s a no for me Ramy. Is the thrombocythemia new for you as I don’t remember you mentioning when we met. It is such a pain when we get other health issues, as if bronch isn’t enough. Is the thrombocythemia chronic too?

Love cx

Ramy22 profile image
Ramy22 in reply to cofdrop-UK

Hello!!!! 😀 I have had ET for decades...may have referred to it as bad blood or not at all. It is chronic but medicine usually controls it. My platelet count has started reacting to chest infections so dr blood wants me to take more nasty medication and I want Dr Lung, bless him, to control the infections then I wouldn’t have to take more nasty stuff. Poor dr Lung doesn’t know about this!

I have another blood test on Friday to see if the plc has come down.

I hate the fact that one condition is now majorly affecting the other. I wanted to see if some others have both and what happens to them. It’s pretty unlikely but worth asking... someone else does have an MPN (ET is one and there are 4 I think) and bronchiectasis too.

I hope that you are well. We should do coffee again soon. Xx

cofdrop-UK profile image
cofdrop-UK in reply to Ramy22

h no, that sunds a real pain for you. Dr. Lung is amazing and will hopefully come up with a plan to help keep you off the ‘hard stuff’.

With me the interaction is the GI stuff.

It would be great to meet up again. I hope you don’’t mind if I wait ‘till spring as after this lot of IVs I am trying to avoid bus travel for a while and trying to walk a bit more locally to keep up/get back some conditioning over the winter.

You didn’t mention it hun - I think we were too busy putting the world to rights!

Love cx

Ramy22 profile image
Ramy22 in reply to cofdrop-UK

Thanks C .... spring isn’t far away really so I can wait!!!! You have just given me hope again... thank you! I felt hopeless and now all is well again.

Dr Lung is amazing and all will be fab.

Thank you!

I hope you are OK!

Love,

R xx

Sorry Ramy22, I have never heard of this before, hope you can get the correct treatment. Irene x

Ramy22 profile image
Ramy22 in reply to Izb1

Thank you Irene.... I’ve had it a long time.... it’s just now being affected by bronchiectasis! Xx

Izb1 profile image
Izb1 in reply to Ramy22

Are you managing to control this without medication, hope it doesnt cause you any pain. Is it worth knocking out the meds for bronch whilst you get this sorted, or is your bronch too bad. What a nightmare x

Ramy22 profile image
Ramy22 in reply to Izb1

I have medication for the ET to control my platelet count and there is no pain... but every time I get a chest infection, which is all the time in the winter in the UK, my platelet count is increasing. But, Dr Lung might be able to sort it... coffdrop reminded me how great he is.

Thank you for asking xx

Izb1 profile image
Izb1 in reply to Ramy22

Do hope so, otherwise you may have to have an apartment in a hot country ha! x

Ramy22 profile image
Ramy22 in reply to Izb1

There’s an attractive solution!!! 😀

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