So....I have never posted anything or blogged anything before so I am a newbie and as the post title suggests I have questions and few answers.
Found out recently my Dad has IPF, seems to be progressing rapidly (17% in January and now 33%). He is on 4l of O2 24/7 and struggling with a cough and to move and seems to be getting worse. The immune system suppressing treatments he is on do not seem to be having any effect....
From the journal articles I have read I know there is no standard progression with IPF and no timeline. But it would be helpful to find out if anyone else has experience with rapid progression who can help me understand how fast / what to expect / how long to make the most of my dad.
In advance - thank you for anyone who may be able to share their experience in an area where there is so little out there.