So I left a message to the respiratory specialist and said I am seeing the hospital doctor on the 8th do you have an comments?
He phoned me yesterday I thought ho ho what’s up..he said he didn’t like it, he wants we keep an eye on it, it has to do with white blood cells? So I said what? cancer? So obviously he didn’t want it to discuss over the phone on a Friday night after work 😃 but we have known each other for a long time now. He said talk to the clinician and we keep an eye on it every 6 months.
So I start googling Immunofixation and I see it could be indeed first stage of a myeloma. Wonderful I thought that’s all I need..but I’m no doctor to form a diagnosis based on Wiki reading😉
Wrote to my Lammies friends. Quite a few of them are having this problem. One of them is having gammaglobulin IV every month it dropped so low..So could be LAM related I thought..
Anyway got to be proactive guys I will write to the LAM specialist in Lyons and send him my results and see that he thinks.
Thanks for reading friends x
Sorry if I vented..
We deserve a pretty picture..the Eiffel tower for a change 🌸🌷🌺