Hi, I'm on this forum on behalf of my 67 year old mum suffering with bronchiectasis. The support we've had from NHS has been pretty poor, so I'm on here just looking for some peer support and advice on how best to manage the condition.
We've had some pretty scary episodes over the last 18 months, where mum has been very seriously unwell with chest infections. My mum had cancer over ten years ago, is peg fed as a result and has literally been to hell and back. Despite this, she tries to live her life to the fullest and has 4 little grandchildren with a fifth on the way in Sept! Her recent diagnosis of bronchiectasis (due to the repeated infections and lung damage) has really changed her quality of life. She wants to 'do' but it just holds her back, it's like she's trapped in her body because of it. I feel that health practitioners have somewhat given up on her, as she has so many health problems, but prior to her chest problem, she had a very full and active life (even being peg fed!). She's only 67 and has so much to live for, so any help or advice would be gladly appreciated 🙏🏼
If you've managed to read this far- thank you! 😀💗