I've been gradually getting worse for about nine months, and as it is over eight years since I was diagnosed with NSIP I just accepted that I was now entering the end stage. But then my husband, who is not as ready to give up on me got his bloodhound nose on and read the lists of side-effects from all the medications I am on. When we got to Mycophenalate, it read like a complete list of everything that has been wrong with me (even the runny nose), and the symptoms started about the same time as I was prescribed it.
I've never done this before, but I immediately stopped taking it, and contacted the Specialist Nurse team for advice. They said that no-one else on the drug was reporting side effects, and persuaded me to continue taking it. I had been feeling a bit better, but as soon as I started taking it again the symptoms worsened again.
Is anyone else taking this drug, and if so are you feeling better or worse? Perhaps it is me and this is just coincidence?
Hope some of you can help.