I have been following this forum for a while, finally decided to sign up today. Hope you have room for one more ☺️
I have recently been diagnosed with severe unilateral panlobuloar emphysema with several large bullae in the lower lobe. Due to the emphysema I have moderate COPD.
I have been tested for Alpha-1 Antitrypsin deficiency and a range of interstitial diseases, all came back normal. Haven't had multiple infections in my childhood either. As I am 34 years old and have never smoked or been exposed to any potential harmfull environmental factors, it is quite a mystery for the doctors why I've ended up with this. I have an appointment at a clinical genetics unit later this month, curious to see if they are able to find anything unusual that might explain why I have ended up as a lung patient.
Any inputs or suggestions to my condition are very much appreciated. Besides that, I just wanted to introduce myself and say hi to all of you. English is not my native language, but I hope we will manage anyway.
Wishing you all a lovely Sunday.