Good morning to you all. I am posting for the first time, hope I don't mess up or sound silly. My husband was diagnosed in 2006 with pulmonary fibrosis and although we regularly attend the royal brompton for his care I feel very isolated and uninformed. Really feel as though we've just been left to guess our way through this terrible nightmare. It breaks my heart to see my lovely strong man just going from day to day living on oxygen and avoiding people in case they have a cold etc. Well enough self pity, just want to say a big Thankyou for letting me into the fold and its good to hear all your tips. Many thanks and happy St Patrick's day x
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