I am 29 and newly diagnosed with Bullous Emphysema. This is my story, i have always had lung infection issues since i was a kid. I started smoking at 13, about a pack a day. I continued to smoke until my diagnosis, although there was about 2 years when i had quit. Two years ago, i had bronchitis, my Dr had me do an Xray. She called me and told me i needed to see a lung specialist. I went to see him, he showed me i had a bulla on my scan and i needed to do an A1AD test. It came back negative. He said it might have been a congenital issue, and there was nothing to be concerned about. So, i wasnt. I kept smoking. A couple years later, i suffered a rib fracture. Since then, i began to cough all day, and had moved to a new town. I got together with a new lung Dr, she ordered a new CT, i thought nothing of it. Then she calls me and says i had new bullae, the one i had was much larger, and now i have bullous emphysema. I am very anxious about the future. She redid the A1AD test, still came back normal. How did this happen so early, i just had a follow up CT a year ago and it was clear except for the original bulla! I also have scattered areas that are already collapsed, i cant remember the name of the condition though. Is anyone on here as young as i am with this condition, or can anyone with this type of experience give me advice on how to cope with it? I have a 2 year old daughter, im afraid to leave her behind. I also now have chest pain very often.
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