I would like to know if there is anyone out there with primarily Emphysema, maybe diagnosed on CT scan, though you had "normal" spiro, or at least mild obstruction, despite how you felt. Whether you smoked or not, your age, and symptoms at the time. DLCO levels. Maybe you tested positive for Alpha 1?
Currently I have been short of breath, wheezing for several months. Chest xray normal, initial spiro was normal, but repeated and numbers went down. Supposed to have a Pulmo appt soon and will get full PFT's then. I have dyspnea all the time and a wheeze. Worse with activity. Quit smoking soon as it happened. That was several months ago. Feel like I am getting worse. Albuterol helps, but not much. Even talking makes things worse. I don't cough. Never have.
Appreciate any feedback. My Pulmo saw my spiro done by another doctor and though it was fine, but says DLCO needs to be done. My symptoms are bad, yet I am only "mild" on Spiro, but was normal a few months ago. Figure I may have lone Emphysema. Guess I will find out soon, in the meantime Iappreciate any info you can provide about your story.