chronic allergic alveolitisic extrinsic - Lung Conditions C...

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chronic allergic alveolitisic extrinsic

budleigh4 profile image
4 Replies

i have had the above condition for 9 months am presently taking 40 prendisoline

and 100 azathioprine, alendronic acid a dcal

woukd like to contact any one who has same condition

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budleigh4 profile image
budleigh4
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junespoon profile image
junespoon

Has anyone heard from MaddyO2 lately please ?

accygirl profile image
accygirl

Hi budleigh4

I have been battling this condition for two years now. Took 7 months to get a diagnosis and longer than that to get any knowledgeable doctors. I have been on steroids for the last 5 months and am currently reducing the dose.

Still not entirely sure what's causing it but it looks like it's the feather bedding as I don't have exposure to any of the other usual causes.

Nice to meet you, there aren't many of us around.

Jackie

budleigh4 profile image
budleigh4 in reply to accygirl

Many thanks for response

Regards

Chris3 profile image
Chris3

I was diagnosed late 2010 and have done really well on prednisolone.

I've just started a course of cyclophosphamide as my consultant felt I could benefit. Here's hoping.

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