i have had the above condition for 9 months am presently taking 40 prendisoline
and 100 azathioprine, alendronic acid a dcal
woukd like to contact any one who has same condition
i have had the above condition for 9 months am presently taking 40 prendisoline
and 100 azathioprine, alendronic acid a dcal
woukd like to contact any one who has same condition
Has anyone heard from MaddyO2 lately please ?
Hi budleigh4
I have been battling this condition for two years now. Took 7 months to get a diagnosis and longer than that to get any knowledgeable doctors. I have been on steroids for the last 5 months and am currently reducing the dose.
Still not entirely sure what's causing it but it looks like it's the feather bedding as I don't have exposure to any of the other usual causes.
Nice to meet you, there aren't many of us around.
Jackie
I was diagnosed late 2010 and have done really well on prednisolone.
I've just started a course of cyclophosphamide as my consultant felt I could benefit. Here's hoping.