I’ve got Dilated Cardiomyopathy & heart failure I was diagnosed in February and haven’t worked for the last 6 months we are receiving universal credit as I am in the limited work capacity group I was told to apply for PIP but it came back I wasn’t eligible I hadn’t scored high enough I had an interview over the phone they spoke to my heart nurse who verified my condition.
The questions aren’t aimed for this condition because I can wash & dress myself wipe my own ass answer the phone plan a journey and do online banking which is all very well but I still can’t work !!
How are people getting it with this condition ????
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Archiebear1
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13 Replies
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Hello
Regretfully these questions they ask are all standard and are not flexible for different conditions
I can only think that you appeal plenty do and they get it
Others hopefully will come along and have better information for you but I would appeal you have nothing to lose
Good Luck x
If you can generally do the things they ask about without any issue, then you’re not eligible for PIP: whether you’re entitled to it is determined by the impact of your illness or disability day to day, not what condition you have. As symptoms, things like breathlessness, weakness, and fatigue, should all be considered when writing answers to the questions, which are symptoms that people with heart failure may experience - if you can wash yourself but you need to take time out to recover from the effort of doing so, then that’s where the emphasis needs to be in the answers. If that’s the case and they didn’t award you points, then you should appeal, but looking at the points descriptors may be helpful in determining whether that’s going to prove beneficial. The descriptors are how the assessors score the impact of your disability and determine the points they award you, and can be found here:
From multiple personal experiences, applying for PIP is as much about how you word your answers as it is what you write. It may be that’s played a part in a low score, and getting help filling in the forms the first time is always the advice I give to anyone that hasn’t done it before for that reason. That doesn’t help you now, I know, but the point I guess I’m trying to make is that there are lots of eligible people that get turned down in the first instance as a result of how they completed the form.
Unfortunately, if you’re already receiving UC and everything you’re entitled to via that route, PIP is pretty much the only additional thing out there. If you haven’t done so, using a calculator like the one at turn2us.org may also be helpful to check you are receiving all the benefits you’re entitled to. If you’re a renter rather than a home owner, you could also enquire with your local council about discretionary housing payments in the short term.
Do an mr and you may be successful if not appeal it and you will probably get pip . There are key words you have to use , safely, without injury, without risk , anxiety. Have you mentioned your breathlessness? That it drastically reduces your ability to walk a distance you could do before without stoping ? If not mention it in your mr . I also have what you have but I got pip for nerve damage to my hand and chronic back pain , they never took the heart stuff into account at all which is the reason I applied in the first place . So first steps for you , call them up and inform them you want to do an mr. Good luck if you need any more help , either hit me up a message or join some of the pip and benifit sites on Facebook x
Ahh Thanks it’s the same old thing knowing how to play the system it’s disgusting I’ve never claimed a penny before I’ve got 3 kids a mortgage and my wife works at a school so low income but too high to get any other help such as free prescriptions I take 10 tablets a day !!!
Hi, I recommend getting the citizens advice to help you fill in the form for an appeal. I applied for AA and they helped complete my application form. They must know the right words to use as I only hoped to get the lower level. And even that after an appeal but I was awarded AA at the highest level straight away.Mind you it does make me wonder if I’m iller than I think I am🙀 Good Luck.
Take a look at the Benefits and Work website which explains what the descriptors mean. YOu need to be able to do things consistently and without pain. If doing something means you have to lie down and rest afterwards that is not consistently and you should appeal the decision but do get help beforehand. When applying for carers allowance for her mum a friend said that she could get upstairs. What she didn't say was there had to be one person pulling her up and one behind lifting her feet and pushing. For every single action you must explain how it affects you. If you can afford he small subscription to join the Benefits and Work website I would strongly advise you to. The advice to members is second t o none.
Book an appointment with Ciyizens advice. They will know how to fill it in, you need to tell them the imact your symptoms have on your daily living. If you have to stop to get your breath when walking, if you get anxious about going out, if you wake up in the night, disturbed sleep, fatigue. My partner is going through this process right now, we are awaiting a tribunal now. Do not give up but please get help. Do you stand and prepare a cooked meal, ordo you now have a stool in the kitchen and make yourself a sandwich instead. Have you got z stool in the bath for showering. Get the discriptors off gov.uk and work towards that. Good luck
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