New and scared: Hi just had a TIA and... - British Heart Fou...

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New and scared

DMHH profile image
DMHH
13 Replies

Hi just had a TIA and might also have a murmur. Finding it hard coming to terms with and very scared.

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DMHH profile image
DMHH
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13 Replies

Hello & Welcome :-)

I am so sorry what you have found out and I can really relate to your fear you will be feeling and how you are struggling to get your head around it even though my problem was heart attacks and then Bypass op the feelings of shock coming to terms with it and fear feel just the same

At first it really feels so frightening but they have picked up these things and that is the thoughts you need to keep hold of that you are now in the capable hands of the Specialists who deal with these exact same problems with patients every day and because they are so clever in what they do patients go on to live a normal happy life :-)

I am sure others that have been diagnosed with the same as you will come a long and give you more reassurance and avise as they see your post :-) x

Heyjude31 profile image
Heyjude31

Hello, I cannot really add anything to what BeKind28 has said. We hearties are here for you and sending you lots of support. I am eight months post bypass, and one thing I have learned is to give yourself time and self care. Judi

RufusScamp profile image
RufusScamp

I think we have all been a bit frightened to find our body is not working as it should. Do you have family or friends you can talk to?We learn to cope, more or less, and many of us make any recommended lifestyle changes. Remember, there are many more and effective treatments available now. Please continue to use this site where we can share experiences, and offer loving support.

Cazzie101 profile image
Cazzie101

I’m sorry to hear you’ve been diagnosed with these conditions. It’s important to give yourself time to adjust mentally and physically and it doesn’t happen overnight. I’m 59, female and have a heart murmur which I was born with and had a TIA in December. I’ve stopped taking the statins I was prescribed (personal choice) but take clopidogrel 75mg daily. As long as you take the meds and lead a healthy lifestyle and listen to the specialists you will be fine I’m sure of it. Just be kind to yourself and not expect to fix things right away.

DMHH profile image
DMHH in reply toCazzie101

Hi it’s makes a huge difference to hear from someone who’s my age thank you 🙏

Dear DMHH

Hello to you , there is nothing that I can add to the responses to your post than to tell you that you are not alone and my heart goes out to you on this fight of yours.

If you can take the time to read other posts about how people travel along their journey, you will begin to see that the fear you have is felt by many.

This in no way distracts from the fact that you are an individual and have your own needs.

As you begin to accept what is happening around you {takes time} the healing process will become clearer.

We are here to help you with that process.

Take care.

Your experiences echoes mine. A TIA followed by a full stroke. The tests the neurologists made to find the cause found a murmur too and diagnosed aortic stenosis. Within 3 months I was in hospital having an aortic valve replacement. I was in shock and denial. I had never had any kind of operation, never been in hospital and never had a general anaethetic. We were in the middle of the first lockdown and I felt isolated so I fully understand your thoughts and feelings. My stroke left me with aphasia so I found it difficult to fully understand what was happening. I hadn't discovered this group then so the greatest help and support came from my fellow patients and the hospital staff. It meant I didn't feel alone. The best advice I can give is to rely on the support on everyone around you That feeling of camaraderie you will feel will carry you through and just take one day at a time if you can. Good Luck with all your future treatments. Irene

I want to add a positive note to my earlier reply. My heart is fixed, I'm driving again, my cardiac surgeon is as pleased with his work as I am and my neurologist tells me I am now no more likely than the next person to have another stroke. This is the silver lining at the end of your cloud.

DMHH profile image
DMHH in reply to

Wow - what a great and hopeful tale. Thank you

in reply toDMHH

👍

Gemini1966 profile image
Gemini1966

Hello you don’t need to be scared😋had TIA Nov2020,I am 56 and have had a new lease of life due to fantastic NHS staff❤️April 2021 I had open heart surgery replacing 2 valves with metal valves,yes I have to take warfarin for the rest of my life but such a small price to pay,honestly you are well looked after and before you know you will feel amazing,I’m back working full time and have 8 grandchildren so a busy lady,all the very best and I’m here if you have any queries,take care ❤️

DMHH profile image
DMHH in reply toGemini1966

Wow that is so inspiring thank you for taking the time 🙏

Beta70 profile image
Beta70

I had a TIA in February 2020 and was prescribed clopidogrel and statins. I have continued to take these, cut out unhealthy fats and done more exercise swimming and walking. At almost 70 I have had no further problems. Fingers crossed.

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