Disappointed: I know that I should be... - British Heart Fou...

British Heart Foundation

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Disappointed

Tubbylardo profile image
10 Replies

I know that I should be grateful and that my recovery has been good. Today I got the results of the Echo I had in October. I was finally going to find out what my EF is after all the surgery and medication ....

Very disappointed that it is a visual estimation of 40-45%. I was so hopeful that it would be above 50% and closer to 55%. I know it is illogical and don't want to be a miserable whiner but I can't help feeling upset and cheated.

40-45% is a lot better than the 15% I started out at and I do feel stronger and healthier. But I can't help feeling the way I feel. Reading the letter this evening was a real kick in the guts.

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Tubbylardo profile image
Tubbylardo
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10 Replies
Nettekin profile image
Nettekin

Hi T. Sorry you are feeling so down today. Being logical is not necessarily a trait of anyone who has had a heart event, but we have logical days too that balance us out. As for whining - why not? A good whine never did anybody any harm. When you reflect on your results again hopefully you will see the enormous progress you have made. Maybe a call to the BHF nurses may put things into perspective? With best wishes x

uzininemm profile image
uzininemm in reply toNettekin

Sorry but I do disagree with the statement that a good whine never did anyone harm.

It can have a negative effect on those who read them.

in reply touzininemm

It doesn't have a negative effect on me. I read lots of posts on here where people express the emotions they are currently working through, it's why I first joined in the early hours of one morning to express how I was feeling....I wasn't feeling that positive about anything at that moment in time.I felt a lot better at expressing my feelings and was overwhelmed to find that I wasn't alone and that there were a lot of people on this forum who offered me guidance and advice to help me through the phase I was going through.

Post away Tubbylardo and hopefully those who've experienced the same as you can be the light at the end of your tunnel.

uzininemm profile image
uzininemm in reply to

I am pleased it doesn't have a negative effect on you.

My reply wasn't in relation to Tubbylardo at all (that is why I posted twice), if you had read it correctly I was commented in regards to the statement 'a good whine never did anyone any harm' it is that sweeping statement I was getting at, (and I am not criticising Nettekin by the way), as they have a right to their opinion too.

How many people have you heard say 'stop moaning', (i have heard loads), because moaning can be seen as a negative for some people.

Am I saying people shouldn't whine or moan, certainly not (I have done enough over the years) all I am saying it can be viewed as a negative by some.

It could be argued don't read the posts then, but sometimes it is too late and you can easily miss out something that is beneficial.

It's life and we are all different.

Kristin1812 profile image
Kristin1812Heart Star in reply touzininemm

Actually I think you do have a point! It does seem that the more we repeat things the more we hear them, and begin to believe them. So repetitive moans might mean we are more likely to believe how dire things are, and it could drag us down even worse.But posters here often describe their worries, bad events, upsets etc) and these can also bring some constructive help.

Uncritical good cheer and positivity doesn’t always feel genuine, to me. But that’s me.

Aren’t we all different?!

uzininemm profile image
uzininemm in reply toKristin1812

Yes we are all different, (thank goodness)

and I understand and support your point uncritical good cheer and positivity doesn't always feel genuine to me. The key to it is 'genuine' some people say it for effect like 'have a nice day' with a false smile, whilst others want to concentrate on the positives in their lives and not the negatives (me).

And yes you are right there has to balance, if the negativity leads to a some constructive help then that's good, I just think that where it has that should be shown.

I am glad I made the point, it as not to upset anyone but to simply but another view point and get it off my chest (am I now moaning aagh ).

😱😱

in reply touzininemm

I know where you are coming from, out of habit I always say to people on seeing them "how are you doing"......I don't really want a detailed answer, a "fine", "not too bad", "OK thank you" will suffice.

What I don't want is a blow by blow answer of all their symptoms, Doctor and hospital appointments, tests and results, drug reactions etc etc that they gave me last week!!

However I do see a difference in-between someone continually giving you updates on their health and someone posting on a health related forum about their current state

Nettekin profile image
Nettekin in reply touzininemm

Hi uzininemm. I think what I was trying to say was "a good whine" may avoid bottling up emotions, which can be self destructive in the long term. Such comments may have a negative effect on some people, for others it will evoke empathy. A forum like this is not all rainbows and unicorns, heart problems are difficult, depressing and upsetting - but not all the time and not always of course. Some posts are positive and uplifting, some terribly sad and others quite depressing, but they are all written by people looking for support.

uzininemm profile image
uzininemm

Whilst we all set ourselves challenges as to where we are going to be, I do wonder if you have set your target far too high. Was this done on your own or is this what you were told you could expect?

To receive a news of a 250% to 300% improvement is nothing short of fantastic in my book, there is a lot of people who would be more than happy with that fantastic news.

Dave678 profile image
Dave678

An EF improvement from 15 to 40-45 sounds great to me - mine was 30-35 after last HA and still same 6 months later! Hoping to get to higher reading in a month or so (after different meds) when have next check but at least quality of life has been fine so far - I’d just like reading to be higher so they don’t keep thinking about fitting electronic devices etc!

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