ARVC and pregnancy

[Yeng97]

I am 24 years of age and was diagnosed with arythmogenic cardiomyopathy two years ago . I am thinking of starting a family soon and would like others to with the same condition to tell me how they coped with this . My anxiety is through the roof ⁉️

[Milkfairy Heart Star]

Hello Yeng97

Welcome to the forum,

I suggest you ask your GP to refer you for pre pregnancy and genetic counselling.

This type of counselling is usually provided at larger maternity units in the UK.

A multidisplinary team is usually involved. The team often consists of Cardiologist with an interest in women's heart health, an Obsterican, Midwife and Neonatologist.

Here's a link to one at a centre of excellence in London.

rbht.nhs.uk/our-services/he....

Perhaps also contact Cardiomyopathy UK, a charity for people living with different types of cardiomyopathies.

cardiomyopathy.org/

Good luck !