takatsubo

[Harrison4]

Does anyone else have Takatsubo cardiomyopathy.

[Milkfairy Heart Star]

Hello,

There are a few members of the forum who have experienced a stress event causing Takostubo cardiomyopathy.

Cardiomyopathy UK has some information and they have a helpline. Hopefully they will be able to help.

cardiomyopathy.org/takotsub...

[Harrison4 in reply to Milkfairy]

Thank you for your reply there is an up to date version on the BHF site that has information on the recent research in this country that finds a possible hereditary link, re hormones and the way the heart reacts to a stressful event.

[Ramilia]

Hi Harrison4,

I had a Takotsubo event last October. I've learned an awful lot about the condition from the Takotsubo Support Group on Facebook, which I found mentioned on the BHF site. All of the most up-to-date research can be found there, including that of Professor Dana Dawson at Aberdeen University who also did a really useful presentation as part of the February 2021 BHF Live &Ticking event.

bhf.org.uk/what-we-do/in-yo...

Takotsubo can have an emotional or physical stress trigger or no trigger at all, but it is a serious condition, and there are many different experiences of treatment and recovery.

I know how lost I felt when it first happened to me, so I hope that helps with some more sources of information.

[CathS73]

No, but I had a heart attack after being harrased, I've been diagnosed with Coronary vasospasm but I think it's similar, as heart spasms due to stress.

[Nevea]

I had takasubo attack last may…I had no pain, no stress.just fell down outside suddenly.they did angiogram, echo etc but no damage other than a misshaped left ventricle. Came home on a lot of meds which I’m still taking. Just very tired all the time I’m in canada.