I have joined because I have brugada syndrome and maybe speak to other people with the same .
Brugada: I have joined because I have... - British Heart Fou...
Brugada
Written by
Beverley25
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2 Replies
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Hi Beverley, welcome and sorry to hear you have this unusual condition. I’ve only heard of it because one of my good friends has it. I don’t believe she is on this forum.
However, I could enquire privately if she is interested in being in touch with you, and if you both are, happy to introduce you. Let me know if interested.
Have you looked at the BHF website, maybe they have some stuff. Also, when I got a pericarditis (fluid around heart), I had a tip here to look for a Facebook group on it. Those 2x FB groups have been very useful, so even if you don’t find many here, don’t give up. There will be a forum somewhere & I know how useful the sharing can be.
Meanwhile, as someone who’s had a heart birth defect, I’d be very happy to chat in general terms about heart conditions if useful.
Wishing you good health & links with soul-patients 🤞
Beverley25 in reply to
Thank you for your reply it would be nice to link up with other sufferes
