amiodarone hydrochloride: How long has... - British Heart Fou...

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amiodarone hydrochloride

Gillymaccy profile image
20 Replies

How long has any one been on these ❤️

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Gillymaccy profile image
Gillymaccy
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20 Replies
Gillymaccy profile image
Gillymaccy

Wow been on it 6 months

Gillymaccy profile image
Gillymaccy

Heard you can’t be on it for long

Tessie28 profile image
Tessie28

Since my AVR 6 weeks ago. Worked really well on my heart rate.

Nannysue1 profile image
Nannysue1

Can I ask you how and why you came off of it ?

Gillymaccy profile image
Gillymaccy in reply to Nannysue1

Hey still on them for fast heart rate

Gillymaccy profile image
Gillymaccy in reply to Nannysue1

I Havnt yet

Nannysue1 profile image
Nannysue1 in reply to Gillymaccy

Sorry that was meant for TRST

H-ar4row profile image
H-ar4row

About 4 months so far

Mhutch profile image
Mhutch

I was on it two years ago for nine months following a second heart attack, two TIAs and a period of AF. FWIW I’m 70 and fit. I’m led to believe it’s quite a powerful drug but it did the trick.

Handel profile image
Handel

My husband was on it for two months after his quad bypass. Our GP, in consultation with the cardiologist, said it was no longer required. That was 18 months ago.

Take good care of yourself xxx

Janma123 profile image
Janma123

Hubby took it for about two months following his quadruple bypass, along with Rivaroxaban.

Gillymaccy profile image
Gillymaccy

My defibrillator went off 61 times in 4hours just had a Ablation so my cardiologist said I can’t be on amiodarone for long

in reply to Gillymaccy

I was on it for 9months post heart surgery.

Before discharge, had a scary atrial fibrillation & 150 heart rate that wouldn’t leave with any other meds for 36hours. They started IV amiodarone & did a cardio version (shock to reset rhythm, not as bad as it sounds). They put me on amiodarone for 6m to prevent further AF during the typical heart surgery recovery period.

At the time, they explained it was a pretty nasty substance and they only gave it if nothing else worked. They wouldn’t want me to be on it forever, and if I was still getting AF later, they’d consider an ablation (but sounds like you’ve had this already).

I think I read that it reduces the electrical signals in the heart and this is what stops risk of going out of sinus rhythm. Maybe that signal reduction is not good if you’ve had ablation.

Also, remember to wear sunscreen! Skin can turn blue when on it, as sun reacts with the iodine. Apparently it can be long-lasting/permanent so I didn’t take chances.

I also remember reading it has a very long half life, so it stays in the body a long time. It takes 3 wks to build up to, and then reduce down from, the right therapeutic levels. And much longer to fully leave the body (so sunscreen long after).

Finally, the cannula where I had IV amiodarone made my flesh really sore & apparently damages that portion of vein for a while.

Maybe they also want to see if the ablation worked ? Good luck

Gillymaccy profile image
Gillymaccy in reply to

Thank you so much ☺️

Nannysue1 profile image
Nannysue1

Can I ask why you came off of it?

Heartfeltgood profile image
Heartfeltgood

As far as I can remember about 6 months, after heart surgery.

I take no pharmaceutical pills at this time, I stopped my aspirin, Metoprolol, amlodipine, prilosec due to the aspirin. If I PVC's take magnesium citrate.

My belief is I did not need open heart but there was not much time to think about it and a certain amount of fear. Diet change and much needed sleep would have cured me, I will never no and I have chest discomfort everyday, from the surgery.

Chickenlou profile image
Chickenlou

Fiancé took it for approx 8 weeks following CABG x3 as he had 2 episodes of AFib after surgery (he’d never had AFib before.)

Hes been off it for 4 weeks now and all good so far.

seasider18 profile image
seasider18

Is it not regarded as a drug of last resort ??

verywellhealth.com/the-stra...

Nannysue1 profile image
Nannysue1

Were you using it for AF and if so hows that working without the amioderone

Spitfire49 profile image
Spitfire49

Hi ,l am on amidorone been on it for 5weeks as could not get out of a- fib. I had a episode of heart beat going up to 175 then bouncing right down then up again. It went on for a week . Then after getting nowhere l took my self off to a/e and they put me on amidorone and bisoporol as l have been on a lot of stuff but couldnt get it down. I am scared .

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