Takotsubo cardiomyopathy (broken heart syndrome)

[Mykidsrmyworld]

Hi, I've just been diagnosed with this, are there anyone else with this diagnosis and can give me some advice please?

[jimmyq]

Found this for you;

bhf.org.uk/informationsuppo...

[Mykidsrmyworld in reply to jimmyq]

Thank you

[Milkfairy Heart Star]

Hi

Here's some more information about Prof Dana Dawson who is researching into Takotsubo syndrome.

They are keeping a registry of patients.

blog.bhf.org.uk/the-researc...

Cardiomyopathy UK is another good source of information

cardiomyopathy.org/takotsub...

There are a few people effected by this uncommon condition on the forum and hopefully they will be able to share their experience with you.

Perhaps do a search of the previous posts on the forum.

The Cardiac nurses on the BHF helpline are a very good source of information and support too.

0300 330 3311

Good luck.

[Mykidsrmyworld in reply to Milkfairy]

Thank you so much

[Sarahd56]

Hello,

I've had a heart attack 4 weeks ago, diagnostic angiogram two days ago, all fine , cardiologist had a chat with me afterwards and said I had a pseudo heart attack, I've looked things up and Tacotsudo describes what happened to me down to a t. I had a stressful event happen on a flight, and that's when I got chest pain. I'm on a range of meds now, for how long I dont know. Cardiologist said my mild LVSD will mend in time also. Have you done any reading about this, if not you should, its quite fascinating . Let me know how you get on.

Sarah.