Pericarditis : Hi Everyone, just been... - British Heart Fou...

British Heart Foundation

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Pericarditis

Nelson42 profile image

Hi Everyone, just been diagnosed with pericarditis. 1st time I've ever been diagnosed with anything and as it involves my heart it's scared me. Anyone else had this condition? Cheers

12 Replies

Yes I had it late last year a month or so after an ablation for atrial fibrillation and atrial flutter. I was prescribed a short course of Prednisolone and Colchicine and had to take things easy for a few weeks. It eventually settled down- thankfully

Nelson42 profile image
Nelson42 in reply to Kaz747

Thank you so much for replying! I had a battery of tests which ruled out many things but for some reason I don't feel reassured. Probably my head overreacting. I have an echo booked for Sunday so may feel better after that. Thanks again!

Kaz747 profile image
Kaz747 in reply to Nelson42

It’s always scary when there’re something wrong with your heart. Take care.

I picked up Pericarditis whilst on holiday in Cyprus. Two other Pericarditis patients and myself established a Pericarditis support Group. You are welcome to join us. There are now 220+ members:

facebook.com/groups/1095344...

Helen_BHF profile image
Helen_BHFPartner

Hi Nelson42, how are you doing? This thread might be helpful for you healthunlocked.com/bhf/post...

We also have some further information on Pericarditis and sources of support here: bhf.org.uk/informationsuppo...

Philra profile image
Philra in reply to Helen_BHF

Hi Helen

As a longstanding Pericarditis patient and a founder member of the UK Pericarditis group it works be really helpful if the BHF via Health Unlocked could list Pericarditis as one of the topics as a category in Health Unlocked given that many other heart conditions are listed. I do realize that the BHF provide Pericarditis information elsewhere on the BHF website.

Kind regards

Phil

Helen_BHF profile image
Helen_BHFPartner in reply to Philra

Hey! Thanks for the heads up - great to have you on the community. I've added Pericarditis as a topic :)

Philra profile image
Philra in reply to Helen_BHF

Thanks Helen - that’s good - will make a difference. Many Pericarditis patients think with some justification that Pericarditis is seen as an orphan condition by the medical community and the media compared to other conditions such as heart attacks. Personally I had to leave a job that I loved because of Chronic Pericarditis. I had a Pericardioectomy (5 hour open heart surgery) to treat it primarily because of uncontrolled pericardial effusions. I’m now much better.

Philra profile image
Philra in reply to Helen_BHF

Hi Helen

I also recommend you adding myocarditis as a topic too.

Kind regards

Phil

Helen_BHF profile image
Helen_BHFPartner in reply to Philra

Thanks Phil - I'll tag any threads that i think might be helpful for people to those topics.

Philra profile image
Philra in reply to Helen_BHF

That’s excellent Helen - thanks !

Hi I was diagnosed with it this week I have just finished lung cancer treatment and although I’m taking ibuprofen it’s still niggling on is this normal do you know?

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