We’re currently looking at how we can... - British Heart Fou...
We’re currently looking at how we can better support parents on the community. Which of the following options are most appealing to you?
It would be nice to have lectures from a cardiac consultant to explain heart conditions in more detail, and the established protocols for treatment
Also a more nuanced explaination of the pros and cons of the various drug treatments
hi Helen do you mean patients - no parents? I'm sure you do but just want to check. thank you and sorry if asking ridiculous question, d
No worries! We mean parents of children with a heart condition - apologies it may not have been clear 🙂 More info here: healthunlocked.com/bhf/poll...
Since this forum is for adults; even if they have congenital heart disease, they would not be the parents, if you see what I mean?This question is better suited to a form for child related heart disease as the parents I am sure would really appreciate support.
I have an inherited heart condition & also the parent if a child with this inherited condition.
Yes more professional input on various conditions - just recordings which we could download or stream.
Really good to have a parents support group.
Yes I would like one x
After a cardiac arrest last year I discovered I had Long QT Syndrime. This was recently confirmed by genetic testing. We have just discovered my teenage daughter also carries the inherited gene. Feeling quite bewildered & would love to reach out & provide peer support to others in a similar situation.
As my condition is diagnosed as congenital and my dad has heart problems too I'm concerned about my son showing similar. Id lke to know more as a parent rather than wait for him collapse with a cardiac arrest. He may not be as lucky as I was with someone applying CPR, its another fear I live with so I would be grateful for advice as a parent too. I suspect many parents would appreciate access to advice as its a helpless situation to suddenly be thrown into a crisis with a child with a heart defect.
