Hello everybody!

Sorry I haven't been writing. Dad has been quite poorly and with this new disease of lymphangioleiomyomatosis they diagnosed me with this year as well as severe bronchial asthma I think I had it all this summer. My daughter arrived early September from Barcelona and it has been great to have her at home helping me to sort things out.

I had my hospital check up in September and then I will have another one in December plus I am booked to see a specialist at the local hospital in Lyons France in January, they say he is the guy..I joined the Flam association, the British LAM association put me in touch with them and the specialist doctor so I am a great believer in good associations like Asthma UK. I met a great bunch of ladies because this disease has only touched one man so far! I suppose man get other things we don't^^

Should you wonder what is this strange illness here is the link, orpha.net/consor/cgi-bin/Di...

I warn you it doesn't make pleasant reading but being treated for years with asthma and they discover you have had something else for years which had never been investigated is an important fact for me to share with you.When you know things are not quite right well start digging.

Actually I am one of the lucky ones because it has only spread to my lungs so far, I met girls with abdomen and kidney problems. They have not found a cure. It can degenerate or not. I hope mine won't^^ but it makes me slower then I used to be, I get tired easily. I have breathing physiotherapy and gentle physical training twice a week so keeping fit is the key.

I wish you all well my asthma friends and keep fit and warm this winter :)))

Francoise

2 Replies

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  • I glad you have been diagnosis and yes it sounds a nasty disease. I will pray for your treatment that you get the treatment to help you fight your disease.

    This is my God who I call on in the good and bad times.

    This is a christian band called TEN AVENUE NORTH

    Why are you striving these days

    Why are you trying to earn grace

    Why are you crying

    Let me lift up your face

    Just don't turn away

    Why are you looking for love

    Why are you still searching

    As if I'm not enough

    To where will you go child

    Tell me where will you run

    To where will you run

    'Cause I'll be by your side wherever you fall

    In the dead of night whenever you call

    And please don't fight these hands that are holding you

    My hands are holding you

    Look at these hands at my side

    They swallowed the grave on that night

    When I drank the world's sin

    So I could carry you in

    And give you life

    I want to give you life

    And I'll be by your side wherever you fall

    In the dead of night whenever you call

    And please don't fight these hands that are holding you

    My hands are holding you

    Here at my side wherever you fall

    In the dead of night whenever you call

    And please don't fight these hands that are holding you

    My hands are holding you

    'Cause I, I love you

    I want you to know

    That I, yeah I'll love you

    I'll never let you go, no, no

    And I'll be by your side wherever you fall

    In the dead of night whenever you call

    And please don't fight these hands that are holding you

    My hands are holding you

    Here at my side wherever you fall

    In the dead of night whenever you call

    And please don't fight these hands that are holding you

    My hands are holding you

    Here at my side, my hands are holding you

    Ohhh...

  • thank you for your kind reply :))))

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