Sorry I haven't been writing. Dad has been quite poorly and with this new disease of lymphangioleiomyomatosis they diagnosed me with this year as well as severe bronchial asthma I think I had it all this summer. My daughter arrived early September from Barcelona and it has been great to have her at home helping me to sort things out.
I had my hospital check up in September and then I will have another one in December plus I am booked to see a specialist at the local hospital in Lyons France in January, they say he is the guy..I joined the Flam association, the British LAM association put me in touch with them and the specialist doctor so I am a great believer in good associations like Asthma UK. I met a great bunch of ladies because this disease has only touched one man so far! I suppose man get other things we don't^^
Should you wonder what is this strange illness here is the link, orpha.net/consor/cgi-bin/Di...
I warn you it doesn't make pleasant reading but being treated for years with asthma and they discover you have had something else for years which had never been investigated is an important fact for me to share with you.When you know things are not quite right well start digging.
Actually I am one of the lucky ones because it has only spread to my lungs so far, I met girls with abdomen and kidney problems. They have not found a cure. It can degenerate or not. I hope mine won't^^ but it makes me slower then I used to be, I get tired easily. I have breathing physiotherapy and gentle physical training twice a week so keeping fit is the key.
I wish you all well my asthma friends and keep fit and warm this winter :)))