I have an appt with my consultant tomorrow. i am suddenly feeling very very anxious and actually quite tearful about going. I have seen this consultant before, and I dont really like seeing him as he is very dismissive and has commented on my weight and stuff which im quite sensitive about atm. No-one is gonna be able to go with me, that was my first thought. So I will be all worried and stuff most of the day tomorrow!
I think my worry is that he will just say ""lets see how things go and you can come back in a few months"" and tbh I really can't face that right now. I am starting to feel really rubbish as my pred dose is getting lower, not so much that i cant manage for a few days, but deffo cant manage long term. The thing is if i get there and my chest sounds clear then I'm not sure if he's just gonna say to stop the pred and carry on....and I know for a fact that that will end up in A&E.
My A&E is not very good. They will discharge me before my PF is 50%, and I cant even talk in sentences when they let me go which leaves me in a really tough position as i feel like i cant go back unless i continue to get worse, but there is nowhere i can go for help as OOH, GP, NHS direct, 111 etc would all just ring 999! So I really really want to get to a point where i dont ever have to go there! and i dont think my consultant will understand!
I guess Im just wondering what you guys would ask, and talk about and stuff at an appt! and the sorts of things that you have been given at these appts! thanks
hugs to all! x