Will keep the intro brief. As the name suggests I have two asthmatic boys. J is 5 will very well controlled cough variant asthma. R is 2.5 and was premature. He had a rough start being ventilated and our troubles have continued since then.
It really has been an enormous struggle and it continues as his asthma is poorly controlled still and I just feel we aren't really getting anywhere. Last weekend ended up with a floppy child and an ambulance to CAU. We often get told his chest is clear and to just keep doing as we are despite him telling me his chest hurts and he's physically exhausted and tachycardic. His chest was clear the last time he ended up on 15 days of pred so it's obvious he doesn't always wheeze. He knows when he's struggling though and tells me which is fab, but the drs don't seem to take much notice but I really need to learn to put my foot down and not worry about how much I'm taking him to be checked out. He sees a community respiratory nurse who is fab and takes the brunt of my fed up phonecalls but we seem to being left to carry on not really improving.I think I should be asking to be referred to a consultant (he had a neonatal consultant but was discharged before the worst of this started.) as I'm so tired of feeling like a neurotic parent.
I'm so glad to have found this site and see others are going through the same (which also saddens me.) for some moral support and reassurance I'm not mad!
Look forward to talking to you all.