I suffer from brittle asthma and am constantly in and out of hospital and A&E. It has now got to the stage where it is very hard to cope with and without sounding overly dramatic is ruining my life. It is also very hard for my sister and for my mum who is a single parent. I hate hate HATE staying in hospital as I am sure you will all understand and as a result I feel that my treatment has reached a dead end.
I am under the care of RBH hospital and my local hospital but there is a distinct lack of communication between hospitals and GP and no-body knows just what to do with me lol.
Last night in A&E I discharged myself as I just do not feel the care is there anymore and that what they can do for me in hospital I can do at home (nebs, steriods etc).
Now what I am wondering is if there is any support for families that go through this kind of thing as it is a very lonely world with asthma and I see support for cancer sufferers etc but nothing for asthma, which in my eyes can be just as dangerous, if not more. My family is now suffering as a result of my brittle asthma, and it is very difficult to sit back and watch.
If anybody could let me know if there are any support groups in the Essex/South London area? Or if there is a telephone number that we could call just to chat to somebody?
Thank you for reading my rant I am sure there are many of you in the same boat!!! x