Something i have discovered recently is you cannot have only one medical condition. If you have one you end up with lots. I have a genetic condition along with lots of other medical conditions one being asthma. Over the past 4 years my health has gradually deteriated to the point now i am not well enough to do most of the activities i enjoy let alone be well enough to work. It is quite frightening how much my health has deteriated. I can only walk very short distances on a good day. My medical team i have to say are being fantastic and very supportive. They are helping me through each hurdle as i come to them. For example at the moment i am fighting a chest infection and a kidney infection. I am feeling sick almost constant with it and am very off food which means i have very little strength or energy.
I want to encourage you not to take life for granted because you never know when you might no longer have much of it! I also want to encourage you to always tell your medical team or GP exactly how you feel (symptoms and emotions) so that they can treat you as only you knows what your body is feeling they cannot read your mind or see your symptoms just from looking at you. At the moment it is my faith that is keeping me going because the rest of my world seems to have fallen away resulting in i cannot do what i used to enjoy.It is hard to keep myself motivated to try and get my strength back after each hurdle ie you end up in bed for a week and then it takes you 3 months to build back up your lost muscle tone which was already low from your last infection. It is hard but i think what is important is trying to remain cheerful.
Thank you for reading my woffle!
a mixed plumie