Maddie has been in hosp for couple days this week for planned tests. its been horrible!
The naso gastric tube she needed was traumatic for her to have put down. She had a rough couple of days but was discharged Tues. I had to go back to the hosp yest to pick up a neb and to have training on how to use it. I drove there with 2 small children, sat in the waiting room only to be told the nurse who needed to do the 'hand over' was away!
Again today im waiting to hear what I need to do!
Im shattered and exhausted with all of this. I feel drained and on edge totally watching my little girl upset or uncomfortable.
Shes brewing an attack as seems to have all the visual signs.
I just feel at the end of my tether and wish the hosp could be more supportive once home!
I seem to be walking around in a complete daze to be honest, not sure which way to turn. Ive got 2 other children. Trying to juggle them all and at the same time be on stand by for an attack is taking its toll on me.
Anyone else feeling like this? Its so hard being a parent to an asthmatic. Unless people have first hand experience of it, it must be impossible to understand. I put a brave face on to the world but inside Im crumbling.
Dont really want any advice, just need to write it down somewhere and thought here the ideal place.