Who can tell me what the process is b... - Lung Conditions C...
Who can tell me what the process is between referal by a consultant to assessment at one of the Lung transplant centres
Hi, I was referred in July 2011 by the consultant and went for the tests at Wythenshawe hospital the following February after a few hold ups due to nodules on my lungs I went on the waiting list In August2012 although one of my colleagues who was in withme in February actually had her transplant in October. Unfortunately I am still waiting but optimistic. Susie Q
Hi Seyre, thats a year to get on to the list, I dont think I'll last that long! But thats with the nodule problem. Your colleage , 8 months from referral to transplant, thats pretty good.
Can you tell me what tests you had at Wythenshawe, I've have the ct, heart, bone , lung function, blood tests etc.
Waiting is frustrating but you are optimistic which is important, never give up. Phil
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hi can u tell me how u get put on the list for transplants.im new a bit copd moderate i live in oldham.ive seen on hear things like transplants .lvrs and valve treatments,we dont get told anything why.take care
Hi caroll, you have to have severe copd for the chance of going on the transplant list but there are lots of help/medication available before it gets too bad. I ha ve been lucky with my consultant who I orignally saw privately and the he agreed to take me on as a NHS patient but I have to say the nurses at BLF have been extremely helpful with advice and I would certainly recommend giving them a call. Good luck Susie xx
Hi Phil, the tests are all what you have mentioned plus urine input/output. Once I had passed all those although they put me on medication for cholestorol and bone density then I went on the list. I think I am bad but there always seems to be others worse on here who haven't had the opportunity of going on the transplant list but they are making the most of what they have got. While on the list you still have to make the most of doing what you can and keep building up your strength in readiness. Optimism is a must along with patience. Good luck Phil I hope you get on the list soon. Susie xx
hi seyre,thank u for ur reply.could i not ask my new gp now about it even though im copd moderate as hear in oldham ther isnt anything only a breathe easy group.ive not been able to go yet,but am hoping 1st tues in may i will.and why is it we have to be so bad can they not do anything now for us ,take care,and do u no anything bout wen ur taking action against a previous gp,as thats wat im doing ,thank u,hope is a good thing and we can all have that,
hi seyre ive just been reading ur previou storys .im 63 a mum gran an great gran of 1,im sorry to hear u have other things as well to deal with god be with u,do u live in manchester i live in oldham,take care
