hello,ive never asked a question on h... - Lung Conditions C...
hello,ive never asked a question on here before im a newbee,im 43 my fevs 30,do they give transplants to emphasemia patients,thankyou
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Hi Moondancer yes i think they do transplants for people with emphasema, but they have to fit a certain criteria, poorly enough to warrant the transplant but well enough to withstand
the trauma of such a big operation, and i think there are lots of tests to under go aswell.
This would be something to discuss with your consultant, but from what i can gather it would be a last resort.But there are lots of people on this site who know all about it.
Hi moondancer. Nice username. 
My FEV is 26% and I'm nowhere near bad enough for a transplant and hope I never will be. Exercise is the key.
Hi moondance and welcome ,I have Empyhasama ,my FEV is 20% and I'm 57 .I have been on the tranpslant list since oct last year at Papworth Talk to your Consuitant .it really it the last resort but if you fit there criteria and strong in mind and body it may be good for you ,it take about a year to have all the tests appointments ect ,but to answer your quuestion yes they will put people with Emphysama on the trantsplant list .good luck let me know how you get on and I'm happy to answer anything take care Jackiex
Hi moondancer, I was at the severe stage at around 20% lung function when I was considered for a transplant two years ago. Unfortunately, because I also have moderate osteoporosis I wasn't a suitable candidate. Libby
as others have said have a chat with your Consuitant the thin is with Emphysama thay have to catch you at the right time i read the blogs everyday but find it hard to understand how bad you have to be i was told last march i was about 18 month away from getting on the list
then i was only able to walk 80 yards on my 6 min test im back up on the 27th of this month but now i find every thing hard to do just the 5 yards to the loo is hard so if i dont get on it now i think it will be to late as i dont think i will be fit enought to get over the opp much longer
im under my local hospital ponty and freemans newcastle the last time i was at ponty 8 month ago i only had 8% lung function all the best to you tho
I was offered the chance to go on the list about 20 mths ago, I had all the tests and fit the criteria. I have now been on the transplant list nerly 8 months and am waiting patiently. A lady who went for the tests at the same time had her transplant 6months ago and is doing well. Susie Q
hi Susie how are you coping with the waiting ,I been on it 4 months and some days I'm up beat ,other days I.m jittery ,or telling myself the call will never come its a bit like being 9 months and a min sort of .It good if you know someone who's had it done and that there doing well .I have a lady at the same GP who had it done 3 years ago she's ok .I'm at papworth .take care Jackie
Hi, We have to cope don't we and hope. I am on the list at Wythenshawe. Fingers crossed it comes early for both of us. Susie xx
p.s. do you need oxygen? I had an exacerbation recently and whereas I used oxygen now and again since my last exacerbation I need it much more and don't seem able to do a great deal without it. They said I was acedotic this time when I went in and it seems to have set me back severely.
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