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Does anyone have any suggestions or advice about possible treatments for obliterative bronchiolitis please?

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EmmyH
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That looks great PB. I wish COPD had a specific organisation to represent it. We seem to be the only disease that doesn't. But then, we are only dying at a rate of one death every twenty minutes in England and Wales alone .......

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Every disease should have one! It just takes one or two people to get started.......

Should your doctor be solving this problem or am I missing something here ?

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EmmyH in reply to

No magic wands here - as I'm sure you'd agree! I am fortunate to have an excellent consultant at a specialist hospital but being recently diagnosed with OB (have had bronchiectasis for two years - more or less under control having removed nasty pseudomonas bugs), I was too taken aback at the last appointment to think what to ask. So... before the next appt some info and some questions would be in order!

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EmmyH

Thanks. This is a great website: very informative and with this amazing "routemap".

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EmmyH

Absolutely agree! Thanks for advice and comments everyone. I suppose I just wondered if anyone out there had personal experience of OB and could suggest treatment that had worked for them.

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