Trachealmalicia

[Quinny11]

Hi, I have just been diagnosed with trachealmalicia and am having a tough time dealing with it. I have been breathless for years and had many sprometry test with restrictive function showing up. I was also born with tracheal esophegal fistula and atresia that was repaired at birth.

Has anyone got any experience or knowledge of this?

[sassy59]

Pete has been diagnosed with trachea malachia too Quinny and the Brompton confirmed this last week.

Pete can sometimes cough out and then not get a breath back in so his trachea goes floppy and Pete loses control momentarily. I am used to it now and just talk too him gently until he recovers.

I hope you can find out all you need to know and get all the help you need. Take care xxxxx

[Sued1958]

I have been diagnosed with tracheobronchomalacia where all the airways close up - this makes it difficult to bring the mucus up from my bronchiectasis. I too had problems at birth I believe I was born with a hiatus hernia.

I am always breathless and have a constant hacking cough.

I am waiting to commence a trial of CPAP which will hopefully help the airways to stay open. It isn't a proven treatment apparently but my specialists are of the opinion it will help.

I will update you when I start my trial if it works - I really hope it does as I can't walk anywhere at the present