acetylcysteine ?

[jimmyw123]

anyone heard of this or know anything about it,, just been looking up wikepedia

[Toci]

One of it's uses Jimmy is to thin out mucous and make it easier to clear.

[jimmyw123 in reply to Toci]

yes toci, it seem s to be strange stuff, but it did say it was used in copd,, but i had never heard of it,, just really wondered...jimmy

[stilltruckin]

ncbi.nlm.nih.gov/pubmed/233...

[Quote] High-dose N-acetylcysteine in stable COPD: the 1-year, double-blind, randomized, placebo-controlled HIACE study.

. . . . .

CONCLUSION:

In this study, 1-year treatment with high-dose NAC resulted in significantly improved small airways function and decreased exacerbation frequency in patients with stable COPD. [/quote]

[jimmyw123 in reply to stilltruckin]

hi stilltruckin,, just goes to show,interesting ,,, so it must have been tested for copd,, any idea if it was tested in this country ,,jimmy

[jimmyw123]

i had never heard of this,i havent a clue what it is,,, but just looked up wikepedia , and saw copd mentioned.

[jimmyw123]

no wonder you got aquitted trichotillomania never heard of it,, but you live and learn

[coughalot60]

What is a tegestologist please? I have never heard of it

[Hidden in reply to coughalot60]

collects beer mats asked google

[longlungs in reply to Hidden]

gold star and a smiley face exactly what I did lol Janexx

[jimmyw123 in reply to longlungs]

same as me jane :), jimmy xxx

[jimmyw123 in reply to coughalot60]

could they not just put a "beer mat collecter" a bit easier and less time to look up lol

[jimmyw123]

no no, no offence taken,, at all,, i just looked up,, that word [cant spell it no, no i know your joking,,

i got the shoulder oxygen bag sent this morning, the face mask [and i need it lol ] and the earprotecters are still to come,,,,,,,,,,,,i think their sending things in installments lol

[heho]

Been precribed this medication for lung condition . Does anyone know the side effects please as leaflet is in German ! Thank you

[rustydexter in reply to heho]

I have taken NAC for many months with no side effects i usually have problems with most tablets. I am suffering with I.P.F

[jimmyw123 in reply to rustydexter]

i now know what NAC now to find out what IPF i,,please excuse my ignorance ,,, but thanks rustydexter,, regards,,jimmy

[heho in reply to rustydexter]

thank you

[jimmyw123 in reply to heho]

still checking this up heho,, shall try to post side effects tonight,, regards,,jimmy:_

[Sooki]

I also take it for IPF, I have no side effects.Sooki

[jimmyw123 in reply to Sooki]

hi sooki,, without sounding stupid [which i am lol ] and without checking up,,,,,what does IPF stand for.,,[im just finished doing medication, carer just away,, brain still not in action ,jimmy

[Sooki in reply to jimmyw123]

idiopathic pulmonary fibrosis.Its a killer most on this site suffer with COPD but there are a few of us on here with IPF. Regards Sooki.

[jimmyw123 in reply to Sooki]

ahhh thanks sooki, not so very good that at all !!! ,, thanks for the explanation,, best regards ,,jimmy

[imelda16 in reply to Sooki]

Hi sooki

I have taken NAC for IPF and had no side effects my consultant said it may help. It seemed to reduce the cough and thin the mucus but at the moment I have a bad chest infection and taking the usual antibiotics so must admit I stopped for a couple of weeks now. After attending the same Hospital clinic for 3yrs and on ambulatory 02 I have been referred to another Lung centre and consultant to see if the drug Pirfenidone will stabilize my condition. So have to go through all the tests and scans again for their opinion.

[Sooki in reply to imelda16]

Hi,Imelda I am on pirfenidone started it last November,it's for mild to moderate IPF,not too bad on it,haven't much appetite but I think that can be down to the IPF,I am tolerating it well,have been having blood tests and liver has been fine,I just hope it does it's job and slows down the IPF, I am on ambulatory oxygen,I attend Papworth hospital even though I live in Birmingham,it's a centre of excellence for IPF.Hope you get over your infection soon,and I often forget to take my NAC,don't think it's vital to take them.Regards Sooki.

[imelda16 in reply to Sooki]

Thanks sooki for reply I have heard of Papworth and also Brompton but I live in Manchester and up to now I would say Dia gnosis and treatment have been as anyone would get with IPF. As you know treatment is nil and then last resort Lung transplant I just want to keep up with the latest info and get the help I need.

[rustydexter in reply to Sooki]

hi Sooki I am hoping to get on Perfenidone , but must have a scan next week as I had cancer and had part of my lung removed. I think they feel it may be a waste of money if the cancer has come back . so I am keeping my fingers crossed ,it's a hard life but I can understand the doctors reasoning.

[Eve3066]

Been taking NAC for two years now, no side effects and I think better immune system.

[jimmyw123 in reply to Eve3066]

hi eve ,, sounds as if has been good for you,, i feel that daft now i actually have seen the letters N.A.C.but didnt know what it stood for, but after checking things through,,[and looking at a dictionary with all these big words lol :)] it seems this is a supplement/medication for many things,mucus reliever, for hair pulling ,many drug related things,, and even for help in stopping smoking,and many other things, i am always unsure of anything i dont know about, but i am still looking at it.,, thanks eve jimmy xx

[Eve3066]

It's ok, my son found this in USA a couple of years ago an d brought me some home but you can buy it on line or at holland and Barrett . I certainly think it has helped over the years.

[jimmyw123 in reply to Eve3066]

sounds good eve,, yes i would imagine you would get it here,, in a rush at the moment , shall pop on later,,,kind regards jimmy.

[jimmyw123]

one of its uses is to stop pulling your hair out!!!!!

i asked the chemist, the opposite, "what could i get to keep my hair IN",,,,,,,,,she just gave me a wee cardboard box lol, ..[ah well its still early :)] i will pop on later, few things to catch up on,, my breath for a start :),, love,,,jimmy xxx

[jimmyw123]

need some sensible advice about NAC , some have posted here,re. this supplement/drug?

on the serious side, is there many use this? is there benefits? is there side effects? does it work ?

i would just like to hear from folks who have used or tried this,, for copd..regards jimmy

[Hidden]

For a wikipedia reader Jimmy123 easy peasy light reading

Twice daily N-acetylcysteine 600 mg for exacerbations of chronic obstructive pulmonary disease (PANTHEON): a randomised, double-blind placebo-controlled trial

thelancet.com/journals/lanr...

[jimmyw123 in reply to Hidden]

hi allison , with due regard and total respect , it is easy reading on wikipedia, but theres lot thats not on that,,and a lot more to it than that, i know nothing about this drug,,i,e drinking it with cola etc?,, i was really wanting to hear "from the horse mouth" so to speak, if you get my meaning, i,e the questions in my last post,, do many people

use it etc? benefits side effects etc,,,, theres a fair bit on the link you have put on, but you need to join , and log in to find the rest, but i will do allison that when i get time later tonight,, but thanks for the post and link, kindest regards,,,jimmy xx

[stilltruckin]

I've been taking 1800 mg/day of N-acetylcysteine for a few years. I've not had any side-effects, and though I just feel 'normal' now of course, I remember noticing a distinct improvement in my COPD symptoms when I first started using it. And it has many other health benefits . . . lef.org/magazine/mag2010/ma...

[jimmyw123 in reply to stilltruckin]

hi still stricken, yes, thats a good link,and its good that you note that you do feel better for taking this NAC, , that can only be good, i suffer terrible from deep down mucus in the mornings , it seems to be right at the bottom of my lungs, i know if this stays there it is a haven for infection,[which i have had plenty of] often quite exhausting clearing this,, i have been using my saline neb after my salbutamol, it does seem to help, but hard going, i am on oxygen too.

do you think this NAC would be beneficial to me?,, thanks for the post still stricken,, you live and learn albeit slowly in my case thanks for the info, kind regards ,,jimmy

[stilltruckin in reply to jimmyw123]

I used to have half-an hour's exhausting hard work every morning coughing up the night's accumulation of gunge. Not any more. I think you'd find NAC helpful, 1200-1800 mg/day in divided doses, and also . . . copdsupport.ie/about-copd/h...

[jimmyw123 in reply to stilltruckin]

hi still truckin,, yes, that sounds like me,ive got to admit that sounds good,as you would probably know, it really takes it out of you trying to bring up that phlem, , in fact a wee bit worried,as i seem to be producing more

gunge the last couple of days,,, is this NAC on prescription or can you buy it from say, boots the chemist for instance,[i did hear you could get it from holland and barrat] i am just going to look at your link now, but many thanks for your help advice,, well done and many thanks,, regards jimmy

p,s just read about the huffing, my resp nurse did teach me how to do this,[ but easier said than done when its very stubborn]. but there,s more detail in your link,, thanks .,,jimmy

[stilltruckin in reply to jimmyw123]

I get mine from Holland & Barrett but smaller branches may not have it on the shelf. I asked my local store to order it in for me as I'm a regular customer. It's widely available online and often cheaper than H&B (though they do online too) - but I trust the quality of their products and prefer 'live' shopping . . .

[jimmyw123 in reply to stilltruckin]

hi still truckin, yes, im like that myself, prefer to buy direct from a shop. rather than online,even if it means they have to order it, but i will be certainly looking into it, [sorry for delay in answering i was on the phone] once again many thanks,, jimmy

[jimmyw123]

i would be willing to try this, as it seems there are more "fors" rather than "againsts," i think the main thing i was thinking about was re-actions with other drugs, and off course any side effects,..thanks for all that valuable info,,:_,,,jimmy

[stilltruckin in reply to jimmyw123]

drugs.com/ppa/acetylcystein...

[junespoon]

Hi Jimmy I have been taking NAC, since about October 13. and I do think that it has supported my immune system,I also take carbosystiene on script, which really does seem to have helped with the mucus.X

[jimmyw123 in reply to junespoon]

hi june, good to hear from you, can i take the liberty and ask how you get this NAC ,,, hope you are keeping well , jimmy xxx

[jimmyw123]

hi still truckin, thanks for this link, it certainly explains all, in great detail.

if i were to buy this online,i think you said holland and barrat do this, [i cant get out at the moment] can you tell me the amount to order,? and do i need a prescription? and how much it is? , i know its questions again, but i do really think this would help me, i have been wheazing quite bad lately ,each morning and i know its because of this rubbish lying deep down in my lungs, as when i do manage to get this up.. the wheazing stops,, but it is really hard exhausting work getting this up completely, it really tires me out.... many thanks,,,jimmy

[junespoon]

Hi Jimmy, no worries, Stilltruckin told me about it on here, must have been in October, I have taken it since, I get it from Holland and Barrett, I have been to two different H&B now and both had some, Its not on prescription,think about 6pound for a bottle of 30.not exactly sure as we always get other things. Smells fowl when you open the bottle luckily Stilltruckin forwarned me, I pick up 2 bottles at a time but only take one daily,in the morning, May not work for you. But along with the carbocisteine for the mucus reduction,I have been pleased. you take care, enjoy your day weather here in Shropshire beautiful this morning,xx

[jimmyw123 in reply to junespoon]

hi june,, a big thanks,, when i get time and i am able, i will get that from holand and barrat, in fact my sister often goes to the big shopping centre, where there is a h. and b. she will get it for me,,[i read about the smell like rotten eggs seemingly]; but that wont bother me,, the main thing is getting this yuck up, without tiring myself,, best regards june,,jimmy xxx

p, same here in edin. lovely morning, makes a big difference,, spring on its way lol

[stilltruckin in reply to jimmyw123]

It's £8.19 for 30 * 600mg capsules at H&B, but at the moment (and until March 13) they're doing a buy-one-get one-half-price deal on everything, so go online and stock up if you can't get to a shop soon - hollandandbarrett.com/pages...

I recommend taking 2 - 3 capsules a day.

[jimmyw123 in reply to stilltruckin]

i will get this stilltruckin, i,ll try and get plenty, say a months worth at 2-3 a day,, will keep you posted,,thanks,,jimmy

[junespoon in reply to jimmyw123]

Hi Jimmy we have been to H&B to day and they have offer on buy1 get 1 half price, not sure how long .in case your sister goes up soon..xx

[jimmyw123 in reply to junespoon]

that sounds good june,, ill need to phone my sister [her names june too ] first thing in the morning, she goes to the shopping centre quite often, so i,ll mention this to her, she,ll get it for me.., a big thanks june ,, regards,,jimmy xx

[helingmic]

Anyone wants to play chess???