The youngest 2 will be having bone marrow transplants. Was wondering what peoples experiences were. Also my eldest is in an arrested state at present, but due to his LOES score being 14 and already having suffered nerve damage there is nothing the doctors will do when it starts progressing again. Was wondering if anyone out there had experienced this at all. Even though we are struggling we are grateful that this awful disease was picked up early via an MRI due to Autism research. My eldest and youngest both have Autism and ADHD, with the youngest also having Tourettes. This may seem long winded but think it would be beneficial to talk to people also going through this.The last 3 weeks have been the worst in our families life.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.