So last Tuesday I got a baclofen pump implanted. I would like to know if anyone has had my experiences. I currently can only stand a little unlike before the surgery. I also have some incontinence and can no longer get an erection. Is there any hope that this will get better after a few weeks? I just want some
New baclofen pump: So last Tuesday I... - Leukodystrophy Su...
Leukodystrophy Support
195 posts •
New baclofen pump
Written by
Pugman37
To view profiles and participate in discussions please or .
Read more about...
The ability to reply to this post has been turned off.
6 Replies
•
Hello,
I had the Gablofen spinal injection earlier this week. Completely killed my ability to walk. And I couldn't urinate to save my life.
I take it you had the injection? How did you feel on that?
Hasn't put me off, I am having my operation in three weeks.
When I had the injection it took away the spastcity but I couldn't walk
Yes, takes away all muscle tone completely.
More so than an enormous dose of Lyrica.
I am having the pump fitted because I am worried about the damage to my brain from all of the high dose Lyrica/Gabapentin.
Even the spasticity I can live with. If I can but stop the night spasms, I'll be happy.
I will get the injection soon to see how the pump can help me. I can walk today with a cane quite good, it's the spastcity that is a big part of my movementdisorde. So if it's harder to walk with this pump I get confused, I was hoping this should help me with that instead.
I like how the pump Baclofen dose is in the microgram range.
Couldn't really get much lower.
Once the Gablofen was starting to wear off, I took a huge dose of 4-AP, about 20mg.
I could walk quite well. I've posted before about the relation between a decent muscle relaxant and 4-AP. I am really hoping a decent trickle of Baclofen and plenty of 4-AP will see me right.
The ability to reply to this post has been turned off.