If you do, Holly Rausch from New Jersey has offered her support. If you are planning to visit either John Hopkins/Kennedy Krieger Hospital or Boston Mass General Hospital to get treatment for your son, please feel free to contact Holly.
More information available here:
aldlife.org/news-research/l...
She takes her two kids for treatment to both hospitals, and would be more than happy to help support and assist you and your family. If you would be interested in supporting someone in your area, please message me your email address and we will let people in your community know.
I have 3 sons who have just been diagnosed with ALD
Is there any aspect of your condition where you would support? 
I hate to ask but i need to know…how long after the disease sets in do male children have before they lose the battle with this disease?