The whole story

[Marymara]

12years ago AF,I was 57 scary at first then accepted it ,beta blockers kept heart from racing,5 years ago started feeling couldn't walk fast, had bloods done BNP high, suggested heart failure,had MRIs CT which confirmed a cardiologist ??? PAPVR I'm plumbed up wrong,so I'm under congenital cardiologist right ventricle is dilated, pulmonary pressures 48, all in all dont know what's the cause of my change in person, gone from running around like a headless chicken to a very old lady in what I see as a short space of time

[SamAdmin Administrator Arrhythmia Alliance AF Association]

Hello Marymara

Thank you for your post on the Atrial Fibrillation support forum.

We have a booklet that maybe of interest to you about how to deal with AF, we have linked it below if you would like to download and have a read.

api.heartrhythmalliance.org...

Kind regards

SamAdmin

Booklet

[Marymara in reply to SamAdmin]

Thankyou, I have all the booklets

[Rainfern]

Hi Marymara, I hope you are able to get treatment for the underlying congenital condition. It seems it took a long time for this to be diagnosed and I pick up you are frustrated with the cardiologist? I think in your situation I would be looking for a second opinion. You are entitled to this on NHS but could be a long wait. In your situation I would consider paying to see a private EP or cardiologist to discuss all your options. I found the benefits of having a good long consultation - to my wellbeing and further treatment- far outweighed the cost. Best of luck

[Marymara in reply to Rainfern]

Thankyou, I have since 4 different consultants over the years already, I think I must be coming across wrong, I am fully aware of all of the options, I question I just wanted some feed back on pulmonary hypention PH not PAH they is a big difference

[Cavalierrubie]

Sorry to hear of your dilemma. I don’t know if anyone on here will be able to help your particular condition as we are not medically trained. I don’t know what tests you had done initially, but surprised they have only just found this. I had an echocardiogram to find out if any other heart condition was causing AF. I thought this was standard practice. I think l would go private here, as already suggested, to get yourself feeling better. All the best.

[Marymara in reply to Cavalierrubie]

Thankyou