Has anyone suffered from severe constant Nausea and strange sensation in Stomach area just under Breastbone coupled with occasional AF episodes.
I’ve had MRI Pancreas and Endoscopy to see if any problems with Stomach or any upper vital organs, all ok which is a relief, hospital doctor put me on Tilden which I’m not sure is agreeing with me, it seems to keep the AF at bay though.
Any thoughts on the constant nausea would be appreciated. Thank you
I do suffer severe nausea but not all the time. It happens for me first thing in the morning.
I think it is heart rhythm related.
I have Bradycardia and I also suffer nausea after raising my heart rate for example in a heated conversation. As my heart slows the nausea kicks in.
I haven’t found any solution and have had similar tests to you.
I understand that this is all linked with the vagal system.
Pete
Thanks Pete, I much appreciated your reply, I’ve got an appointment with a Cardiologist coming up and will mention it to them, if I get any answers I will let you know. John
I suffer from severe nausea and I believe there is a definite link to AF. 18 months ago an endoscopy showed erosive gastritis, gastric ulcer and recent bleeding. This was put down to Rivaroxaban. I had another endoscopy 9 months later which showed a big improvement in my stomach.
Once I stopped Rivaroxaban, the episodes of AF dropped from on average 1 episode a week to less than 1 episode in 2 months. However, I still had to be careful as to what I could eat.
I have regular CT scans and ultrasound for monitoring previous cancer (nothing to do with this) and nothing appears to be wrong with liver, pancreas etc.
The severe nausea continues and I know when it gets really bad, that I am heading for an AF episode.
I suspect, in my case, that whatever is causing the nausea is triggering the AF.
Just to complicate things, I have a lot of intolerances to both food and medicines.
I really don’t know what the answer is to be honest. All I do know is that I am fed up with constant nausea.
Hello Mrsvemb.Thank you for your reply, sorry to hear you are suffering like you are, like you I’m taking Rivaroxaban, but my Endoscopy showed all ok in the Stomach.
I can’t seem to see any link between the Nausea and any types of food, and it’s just in the background most of the time, sometimes more severe than others, and I must confess it certainly gets you down.
I’m going to try Acupuncture to see if that can help me.
I seem to have got some control over the AF since I started taking Tildem for my blood pressure.
Are you taking Statins by any chance?
Thanks again
John
Is it possible that this could be a delayed late effect of chemotherapy?
No I didn’t have any chemo.
Hi John, no I don’t take statins. I am on Nebivolol, felodopine and Dabigatran.
One thing with me is that I seem to get a build up of certain medications and don’t seem to metabolise them, which in turn causes nausea. In particular, all of the anticoagulants after a few months cause nausea with me.
I have agreement to rotate between dabigatran and Apixaban at the moment.
Also I am not able to tolerate fat. Not gallstones, I am supposed to be having a special poo test to check the enzymes produced in the pancreas.
Let us know if the acupuncture helps you. I am prepared to try anything. I hope it works for you.
Val
Thanks for that Val.I will certainly let you know if it helps at all, take care and hopefully speak soon.
John
Hello again Val.Do you feel that the Anticoagulants are the actual cause of your Nausea, I think I told you earlier that I was on Rivaroxeban, but not sure that they actually bring it on.
Thanks Val.
John
Hi John, I actually think that my nausea is two fold. For example I don’t tolerate fat it makes me really nauseous.
Regarding anticoagulants, I am ok for a few months then get permanent nausea. It might sound stupid but when that happens I know it is the anticoagulants. In the main I go about 6 months then have to change anticoagulants. I have had them all. Funny thing is I was on Rivaroxaban for over two years, no problems, then asked to try Edoxaban due to hair loss. When I changed back to Rivaroxaban the nausea started immediately. I had to continue with it until the gastric problems were diagnosed and then I changed to Warfarin as a last resort. That was the worst one, plus I struggled to keep my INR stable.
There is one exception, Edoxaban which caused the nausea after the first tablet. Upon checking the ingredients, there is a filler called crospovidone that I know I cannot tolerate.
It’s all very complicated and no doctor seems able to get their head around it. The trouble is that when the nausea gets bad, it will lead to an AF episode.
Sorry if I have rambled a bit.
Val
Hello Val.You are not rambling, all these combinations of things are important to try to establish what is causing these things, you seem to have a good handle on the triggers that cause your Nausea.
I just can’t understand why Doctors don’t seem to have a clue of what’s causing it all.
I live in the UK, and to even get to speak to a Doctor if really difficult at the moment, I’ve been to see a Gastroenterologist in the Private sector to try and get things sorted, but that can get expensive.
I gets you down doesn’t it, thanks for sharing your experiences Val.
John
I live in the UK too John. I mainly use private health care, but for some stupid reason I went the NHS route for the gastric problems.I had two consultations last year privately with the most arrogant gastroenterologist you could meet. He was trying to advise me about AF. I have a cardiologist for that! I ditched him.
I was then contacted by another gastroenterologist (NHS) because I had refused to go back for another endoscopy after the horrific experience of the first one. This gastroenterologist promised me that she personally would do the endoscopy and true to her word she did and was very kind.
Only problem is that was last December and I am still waiting for a follow up appointment! Last week I decided, enough is enough and booked to see her privately. She wants another test done and suggested doing it NHS because it is expensive. Stupidly, I agreed. However, the next day I saw sense and contacted her secretary to arrange it privately. Still haven’t heard a thing about getting this test. What is it with gastroenterologists?
We always had private health care with our jobs and continued it after retirement. I just don’t want to add another claim because it will increase my premium considerably.
Val
Hello Val.I’ve been seeing a Gastroenterologist in a Private Hospital in Brighton.
She had suggested I have a SIBO Gut Test, that’s not the one that’s been suggested for you is it Val, it’s £250 and they send it to your home to do the Test, don’t really know anything about it, I think it’s a Gut Bacteria Test.
I’ve fortunately been pretty health all my life, and all this has knocked be back quite a bit, and now I’m going to say sorry for rambling on.
Will let you know if anything comes out of the SIBO test.
Take care Val.
John
No need to apologise John you are not rambling on either. No that’s not the test that I am having. I am having faecal elastase and faecal calprotectin.They check out the pancreas and bowel. I know the pancreas one tests for digestive enzymes. I am not concerned because I have regular CT scans which show no tumours etc.
I do know a little bit about your SIBO test. My late husband had it. It checks for bacterial overgrowth. We were sent to Harley St to get it done. You have to drink something and then blow into a bag at various intervals over about 3 hours. Much better to do it at home. I think five years ago it cost £450 but bill was paid be our health insurance.
My turn to ramble 🤣
Val
Feel free to ramble all you like Val.Not heard of the test you are having either.
I had an MRI Scan to check my Pancreas and fortunately that was all ok, they checked all the up vital organs within the Scan of which I was grateful for,
Indecently Val how long have you been suffering with Gastric issues, did they start with the A Fib, I had a funny sensation in my Stomach about 4 years ago now, and then it went away, came back and that’s when I had a bad A Fib attack, went to hospital, was diagnosed with Paroxysmal AF, but that went away until about 3 months ago, and back came the AF and the Nausea, fatigue, and generally feeling crappy, so all these tests have been in the last few weeks, with as to yet no answers.
Sorry again Val.
Rambling John
Yes John, the structure of my pancreas and other organs are fine. What she is querying is if I am producing sufficient enzymes to digest food. Hence the suggested tests.
I have been suffering from gastric issues for about two years and thought once the stomach problems were identified and treated that would be it, but that is not so. I was told that the issues were caused by Rivaroxaban, so changed my anticoagulants. Certainly, when my stomach healed the episodes of AF reduced drastically. I am just a bit worried that the AF is firing up again. I had 3 episodes in 2 weeks. Two were more than 12 hours and one was 3 hours.
I would love to be able to stop anticoagulants completely, because my feeling is that they are all causing damage to my stomach and that is my problem. However, I can’t take the risk as there is no alternative that can be trusted.
Rambling Val
I understand Val about the Anticoagulants, I’ve not really given them to much thought in all this, my Endoscopy didn’t report any stomach bleeding, I also think that keep taking medication can mess you up after a while, but I suppose it’s something we have to put up with to reduce risks as y out said.I’m going to try Acupuncture as well, just to see how it goes, never done or used anything like alternative things in my life, and I think I mentioned that I’ve been pretty well healthy up to recently, but will give anything a try.
Just bemuses me that medical people can’t give you any sort of idea what’s causing you to feel the way you do, we can’t be the only people that feel this way.
Enjoy your evening Val.
Rambling John
I could have written that.....I am waiting liver, pancreas stomach ultra sound... pain is in shoulder blades refers g to under centre right rib. Hope my is diverticulitis flare and nothing worse
Permanent a fib
Brain, heart and stomach influences on each other
In A-fib again, again, again and again 
PPI misery
